ʻO ka mua-Holomua vs. MS hou

Anter

• He aha ka MS holomua mua?
• He aha nā hōʻailona PPMS maʻamau?
• ʻO wai e loaʻa iā PPMS?
• He aha ke kumu o PPMS?
• He aha ka nānā no PPMS?
• He aha nā hana i loaʻa no PPMS?
• He aha ka MS hoʻi hou ʻana?
• He aha nā hōʻailona RRMS maʻamau?
• ʻO wai e loaʻa iā RRMS?
• He aha ke kumu o RRMS?
• He aha ka nānā no RRMS?
• He aha nā hōʻailona RRMS?
• He aha nā ʻokoʻa ma waena o PPMS a me RRMS?
• Makahiki o ka hoʻomaka
• Nā Kumu
• Outlook
• Nā koho lapaʻau

Hōʻike Overview

ʻO ka sclerosis Multiple (MS) kahi kūlana mau loa e hōʻino ai i nā nerve. ʻO nā ʻano nui ʻehā o MS:

• maʻi maʻi kaʻawale (CIS)
• relapsing-remit MS (RRMS)
• MS holomua-mua (PPMS)
• kekelē holomua MS (SPMS)

Ke alakaʻi nei kēlā me kēia ʻano MS i nā wānana like ʻole, nā pae o ke koʻikoʻi, a me nā ʻano lapaʻau. E hoʻomau i ka heluhelu ʻana e ʻike ai pehea e ʻokoʻa ai ʻo PPMS mai RRMS.

He aha ka MS holomua mua?

ʻO PPMS kekahi o nā ʻano rarest o MS, e pili ana ma kahi o 15 pākēneka o nā poʻe āpau i ʻike ʻia me ke ʻano. ʻOiai ke ʻano o nā ʻano MS ʻē aʻe e nā hōʻeha koʻikoʻi, i kapa ʻia o relapses, a ukali ʻia e nā manawa hana ʻole, i kapa ʻia ke kala ʻana, PPMS ke kumu o ka hōʻemi ʻana i nā ʻōuli.

Hiki i ka PPMS ke hoʻololi i ka manawa. Hiki ke hoʻokaʻawale ʻia kahi manawa o ka noho ʻana me kēia ʻano ma ke ʻano he:

• ʻeleu me ka holomua inā nui nā ʻōuli a i ʻole kahi hana MRI hou a hoʻi ʻole paha
• ʻeleu me ka holo ʻole inā loaʻa nā ʻōuli a i ʻole ka hana MRI, akā ʻaʻole i ʻoi aku ke koʻikoʻi nā ʻōuli
• hana ʻole me ka holomua inā ʻaʻohe ʻōuli a me ka hana MRI a me ka nui ʻole o ke kīnā
• ʻeleu ʻole me ka holomua inā aia nā relapses a i ʻole ka hana MRI, a ua ʻoi aku ke koʻikoʻi o nā ʻōuli

He aha nā hōʻailona PPMS maʻamau?

Hiki ke loli i nā ʻōuli PPMS, akā ʻo nā ʻōuli maʻamau nā:

• pilikia pilikia ʻike
• paʻakikī e kamaʻilio
• nā pilikia hele wāwae
• pilikia me ke kaulike
• ʻeha laulā
• nā wāwae ʻoʻoleʻa a nāwaliwali
• pilikia me ka hoʻomanaʻo
• luhi
• pilikia me ka ʻōpū a me ka ʻōpū
• kaumaha

ʻO wai e loaʻa iā PPMS?

ʻIke ʻia ka poʻe me PPMS i kā lākou 40s a me 50s, ʻoiai ʻo ka poʻe i ʻike ʻia me RRMS e 20 a 30 paha lākou. Kuhi ʻia nā kāne a me nā wahine me PPMS ma nā helu like, ʻaʻole like me RRMS, kahi e pili ana i ka hapanui o nā wahine.

He aha ke kumu o PPMS?

ʻAʻole ʻike ʻia nā kumu o MS. Hōʻike ka manaʻo nui maʻamau e hoʻomaka ʻo MS ma ke ʻano he hana hoʻāla o ka ʻōnaehana autoimmune e hōʻino ai i ka wahī myelin. ʻO kēia ka uhi pale e hoʻopuni ana i nā aʻalolo o ka ʻōnaehana waena.

ʻO kekahi kumumanaʻo ʻo ia kahi pane pale pale i hoʻoulu ʻia e kahi maʻi viral. Ma hope, kū ka hoʻohaʻahaʻa nerve a i ʻole ka pōʻino.

Hōʻike kekahi mau hōʻike i ka MS holomua mua kahi ʻāpana o ka maʻi maʻi maʻi o MS a ʻaʻole ʻokoʻa ia mai ka hoʻi hou ʻana iā MS.

He aha ka nānā no PPMS?

Hoʻololi ka PPMS i nā mea āpau. Ma muli o ka holomua o ka PPMS, ʻoi aku ka maikaʻi o nā ʻōuli ma mua o ka maikaʻi. He pilikia ka hapanui o ka poʻe i ka hele wāwae. Loaʻa kekahi mau haʻalulu a me nā pilikia ʻike.

He aha nā hana i loaʻa no PPMS?

ʻOi aku ka paʻakikī o ka mālama ʻana iā PPMS ma mua o RRMS. Hoʻopili pū ia me ka hoʻohana ʻana i nā lāʻau lapaʻau immunosuppressive. Hāʻawi paha lākou i kōkua kōkua manawa akā hiki ke hoʻohana palekana ʻia no kekahi mau mahina a hoʻokahi makahiki i kēlā me kēia manawa.

ʻO Ocrelizumab (Ocevus) ka lāʻau i ʻae ʻia e FDA e mālama iā PPMS.

ʻAʻohe mea ola no PPMS, akā hiki iā ʻoe ke hoʻokele i ke ʻano.

Hiki i kekahi mau lāʻau hoʻoliʻiliʻi maʻi (DMDs) a me nā steroid ke kōkua i ka mālama ʻana i nā ʻōuli. Ke mālama nei i kahi nohona olakino e pili ana i ka ʻai ʻana i ka papaʻai kaulike maikaʻi a me ka hoʻoikaika kino ʻana ke kōkua. Hiki ke kōkua i ka hoʻoponopono hou ʻana ma o ka lāʻau a me ka hana.

He aha ka MS hoʻi hou ʻana?

ʻO RRMS ka ʻano maʻamau o MS. Hoʻopili ia ma kahi o 85 pakeneka o nā poʻe āpau i ʻike ʻia me MS. ʻO ka hapa nui o ka poʻe ʻike mua ʻia me RRMS. Hoʻololi pinepine kēlā ʻike ma hope o nā makahiki he nui i kahi papa holomua.

Hoʻomaopopo ka inoa relapsing-remit MS i ke ʻano o ke ʻano. Hoʻohui pinepine ia i nā wā o ka hoʻi hou ʻana a me nā manawa o ke kala ʻana.

I ka wā o ka hoʻi hou ʻana, hiki i nā ʻōuli hou ke hōʻike, a i ʻole nā ​​hōʻailona like e hiki ke hele i luna a lilo i mea ʻoi loa. I ka wā o ke kala ʻana, hiki i ka poʻe ke loaʻa i nā ʻōuli liʻiliʻi, a i ʻole nā ​​hōʻailona hiki ke ʻoi aku ke koʻikoʻi no nā pule, mau mahina, a mau makahiki paha.

Hiki i kekahi mau hōʻailona RRMS ke lilo i paʻa. Kapa ʻia kēia mau mea he koina mau ʻōuli.

Hoʻokaʻawale ʻia ʻo RRMS ma ke ʻano:

• ʻeleu ke loaʻa nā kolo a i ʻole nā ​​ʻino i loaʻa ma kahi MRI
• hana ʻole ke loaʻa ʻole nā ​​hana hou a me ka hana MRI
• ke kaumaha i ka wā e hele a ikaika nui ai nā ʻōuli ma hope o ka hoʻi hou ʻana
• ʻaʻole e ʻino ke loaʻa ʻole nā ​​ʻōuli i ke koʻikoʻi ma hope o ka hoʻi hou ʻana

He aha nā hōʻailona RRMS maʻamau?

Hoʻololi nā ʻōuli i kēlā me kēia kanaka, akā ʻo nā hōʻailona RRMS maʻamau e pili pū me:

• nā pilikia me ka laulima a me ke kaulike
• ʻōlohelohe
• luhi
• hiki ʻole ke noʻonoʻo pono
• nā pilikia me ka hihiʻo
• kaumaha
• nā pilikia me ka urination
• hoʻopilikia i ka hoʻoluhi i ka wela
• nāwaliwali o nā mākala
• pilikia hele wāwae

ʻO wai e loaʻa iā RRMS?

Hoʻomaopopo ʻia ka hapanui o ka poʻe me RRMS i ko lākou 20s a me 30s, ʻoi aku ka liʻiliʻi ma mua o kahi hōʻailona maʻamau no nā ʻano MS ʻē aʻe, e like me PPMS. ʻElua paha manawa e ʻike ʻia ai nā wahine ma mua o nā kāne.

He aha ke kumu o RRMS?

ʻO kekahi kumumanaʻo maʻamau ʻo RRMS kahi ʻano autoimmune mau e kū ana ke hoʻomaka ke kino e hoʻouka iā ia iho. Hoʻopilikia ka ʻōnaehana paleʻaleʻale i nā olonā o nā ʻōnaehana nerve a me nā papa insulate, i kapa ʻia ʻo myelin, ka mea e pale ai i nā aʻa o ke aʻalolo.

Hoʻokumu kēia mau hoʻouka i ka mumū a hana i nā wahi liʻiliʻi o ka poino. He mea paʻakikī kēia hōʻino no nā aʻalolo e lawe i ka ʻike i ke kino. Hoʻololi nā ʻōuli RRMS i ka wahi o ka pōʻino.

ʻAʻole ʻike ʻia ke kumu o MS, akā aia paha nā mea ʻelua a me nā mea e pili ana i ka nohona no MS. Hōʻike kekahi kumumanaʻo i kahi virus, e like me Epstein-Barr, e hoʻomaka iā MS.

He aha ka nānā no RRMS?

Hoʻololi kēia ʻano i kēlā me kēia kanaka i ka ʻokoʻa. Hiki i kekahi poʻe ke ola i kahi ola olakino me nā relapses kakaʻikahi wale nō e hana ʻole i nā pilikia nui. Hiki paha i kekahi poʻe ke hoʻouka pinepine me nā ʻōuli holomua e hopena ai i nā pilikia koʻikoʻi.

He aha nā hōʻailona RRMS?

Aia kekahi mau lāʻau i ʻae ʻia e FDA e mālama iā RRMS. Mālama kēia mau lāʻau i ka hoʻoliʻiliʻi i ka hanana o ka hoʻi hou a me ka hoʻomohala ʻana i nā leona hou. Hoʻolohi lākou i ka holomua o RRMS.

He aha nā ʻokoʻa ma waena o PPMS a me RRMS?

ʻOiai ʻo PPMS a me RRMS nā ʻano ʻelua o MS, aia nā ʻokoʻa ma waena o lākou, e like me:

Makahiki o ka hoʻomaka

Kū pinepine kahi ʻike PPMS i ka poʻe i ko lākou 40s a me 50s, ʻoiai ka RRMS e hoʻopili i ka poʻe i kā lākou 20s a me 30s.

Nā Kumu

Hoʻokumu ʻia nā PPMS a me RRMS ʻelua e ka mumū a me nā ʻōnaehana pale maʻi i ka myelin a me nā olonā nerve. Mālama ʻo RRMS i ka nui o ka mumū ma mua o PPMS.

ʻO nā mea me ka PPMS he nui nā scars a me nā pā, a i ʻole nā ​​lehelehe, ma ko lākou iwi kuamoʻo, ʻoiai ʻo nā mea me RRMS he mau ʻiʻo hou aʻe ma ka lolo.

Outlook

Holomua ʻo PPMS me nā ʻōuli e ʻoi aku ana ka maikaʻi ma mua o ka manawa, ʻoiai ʻo RRMS e kū mai me nā hōʻeha koʻikoʻi me nā wā lōʻihi o ka hana ʻole. Hiki i ka RRMS ke hoʻomohala i kahi ʻano holomua o MS, i kapa ʻia ʻo MS holomua, a i ʻole SPMS, ma hope o kekahi manawa.

Nā koho lapaʻau

ʻOiai ʻo Ocrelizumab wale nō ka lāʻau i ʻae ʻia e ka FDA e mālama iā PPMS, aia kekahi mau mea e kōkua ai. Aia kekahi mau lāʻau hou aku e noiʻi ʻia nei. Loaʻa ma kahi o kahi kakini i hoʻomaikaʻi ʻia ʻo RRMS.

Hiki i nā mea maʻi me nā PPMS a me RRMS ke keu pono mai ka hoʻoponopono hou ʻana me ke ʻano hoʻoikaika kino a me ka ʻoihana hana. Nui nā lāʻau lapaʻau hiki i nā kauka ke hoʻohana e kōkua i ka poʻe me MS e hoʻokele i kā lākou mau hōʻailona.