ʻO koʻu ola ma mua a ma hope o ka maʻi ʻaʻai Metastatic umauma

Anter

• Nā hoʻololi nui a liʻiliʻi
• Ke aʻo ʻana e mahalo i nā mea liʻiliʻi
• ʻO ka lawe lawe ʻana

Ke hiki mai nā hanana nui, hiki iā mākou ke hoʻokaʻawale i ko mākou ola i ʻelua mau ʻāpana: ʻo ka "ma mua" a me ka "ma hope." Aia ke ola ma mua o ka male a ma hope o ka male, a aia ke ola ma mua a ma hope o nā keiki. Aia ko mākou manawa ma ke ʻano kamaliʻi, a me ko mākou manawa makua. ʻOiai mākou e kaʻana like i kēia mau milestones me kekahi poʻe ʻē aʻe, aia kekahi mau alo alo iā mākou iho.

Noʻu, aia kahi laina hoʻokaʻawale nui, ʻano canyon i koʻu ola. Aia koʻu ola ma mua o ka ʻike ʻia me ka maʻi ʻaʻai umauma metastatic (MBC), a me koʻu ola ma hope. Minamina, ʻaʻohe mea lapaʻau no MBC. I ka manawa e hānau ai ka wahine, e noho mau ʻo ia i makuahine, e like me ka manawa i ʻike ʻia me MBC, noho pū me ʻoe.

Eia ka mea i neʻe i koʻu ola ma hope o kaʻu kuhi, a me nā mea aʻu i aʻo ai i ka hana.

Nā hoʻololi nui a liʻiliʻi

Ma mua o kaʻu ʻike ʻia me MBC, ua manaʻo wau i ka make ma ke ʻano he mea e hiki mai ana ma kahi lōʻihi e hiki mai ana. Aia ia ma kaʻu radar, e like me ia ma nā mea āpau, akā akāka ʻole a mamao loa hoʻi. Ma hope o kahi hōʻailona o MBC, lilo koke ka make, ikaika, a pono e mālama wikiwiki ʻia. ʻO kahi papa kuhikuhi mua a aia ma kaʻu papa inoa hana no kekahi manawa ma hope o ke ola, akā ma hope o kaʻu ʻike ʻana, ua hoʻopau wau iā lākou ma hope koke iho.

Nānā mua wau i nā mea e like me nā makahiki hoʻomanaʻo, moʻopuna, a me nā male me ka ʻole o ka wikiwiki. E hele mai lākou i ka manawa kūpono. Akā ma hope o kaʻu kuhi, aia mau ka manaʻo ʻaʻole wau e kokoke no ka hanana aʻe, a i ʻole ke Kalikimaka e hiki mai ana. Ua hooki wau i ke kau inoa ʻana i nā makasina a me ke kūʻai ʻana mai i nā lole ma ke kau kau. ʻO wai ka mea ʻike inā makemake wau iā lākou?

Ma mua o ka hōʻeha ʻana o ka maʻi ʻaʻai i koʻu ake a me nā akemāmā, ua lawe wau i koʻu olakino me ka manaʻo ʻole. ʻO nā koho a ke kauka he ukiuki makahiki. ʻAʻole wale wau e ʻike i ʻelua mau kauka i kēlā me kēia mahina, kiʻi pinepine i ka chemo, a hoʻokele kaʻakālai hoʻi i ke kikowaena infusion i koʻu hiamoe ʻana i kēia manawa, akā ʻike nō hoʻi wau i nā inoa o nā keiki ʻenehana nukelea scanning.

Ma mua o MBC, he makua hana maʻamau wau, me ka manaʻo he mea pono wau i kahi hana aʻu i aloha ai. Ua hauʻoli wau i ka loaʻa ʻana o kahi uku a kamaʻilio pū me ka poʻe i kēlā me kēia lā. I kēia manawa, nui nā lā o koʻu home, luhi, i ka ʻeha, i ka lāʻau, a ʻaʻole hiki ke hana.

Ke aʻo ʻana e mahalo i nā mea liʻiliʻi

Ua pā ʻo MBC i koʻu ola e like me kahi puahiohio, e hoʻāla nei i nā mea āpau. A laila, kū ka lepo. ʻAʻole maopopo iā ʻoe ka mea e hiki mai ana i ka wā mua; manaʻo ʻoe ʻaʻohe mea e maʻamau hou. Akā, ʻo ka mea āu e ʻike ai, ua wili ka makani i nā mea nui ʻole, e waiho ana i ka honua me ka ʻālohilohi.

He aha ka mea i koe ma hope o ka hoʻoluliluli ʻana he poʻe aloha aloha iaʻu no ka luhi paha. ʻO nā minoʻaka o koʻu ʻohana, ke kaʻa o ka huelo o kaʻu ʻīlio, kahi hummingbird liʻiliʻi e hū ana mai kahi pua - ua lawe kēlā mau mea i ka mea nui a lākou e pono ai. No ka mea i kēlā mau mea, loaʻa iā ʻoe ka maluhia.

He ʻōlelo ia e aʻo ʻoe e ola i kekahi lā i kēlā me kēia manawa, akā he ʻoiaʻiʻo nō ia. ʻOi aku ka maʻalahi a me ka mālie o koʻu honua i nā ʻano like ʻole. Ua lilo ia i mea maʻalahi e mahalo i nā mea āpau e lilo i leo walaʻau i hope i ka wā i hala.

ʻO ka lawe lawe ʻana

Ma mua o MBC, ua like wau me kekahi poʻe ʻē aʻe. Ua hana nui wau, hana, hoʻokele, kūʻai, a mamao loa mai ka manaʻo e pau paha kēia ao. ʻAʻole au i nānā. I kēia manawa, ʻike wau i ka wā pōkole o ka manawa, ʻo kēlā mau manawa liʻiliʻi o ka nani e maʻalahi e kāpae ʻia nā manawa ia e helu maoli ai.

Ua hele wau i loko o nā lā me ka noʻonoʻo ʻole e pili ana i koʻu ola a me ka mea e hiki ke hana. Akā ma hope o MBC? ʻAʻole wau i hauʻoli.

Ke noho nei ʻo Ann Silberman me ka maʻi ʻaʻai umauma pae 4 aʻo ia ka mea kākau o Ka maʻi ʻaʻai umauma? Akā Kauka ... ʻIno wau i ka Pink!, ka mea i kapa ʻia kekahi o kā mākou nā blog kanulau umauma metastatic ʻoi loa. Pili me ia ma Facebookaiʻole Tweet iā ia @PauKukui.