Mālama iā AHP: Nā ʻōlelo aʻoaʻo no ka huli ʻana a me ka pale ʻana i kāu mau mea hoʻoihoʻi

Anter

• ʻIke i nā mea hoʻonāukiuki maʻamau
• E pāpālua i kāu meds
• Pale i ka make ʻana i ka ʻai
• E hana i nā kaʻi keu e hōʻalo i ka maʻi
• Hōʻalo i ka puka ʻana o ka lā
• E mālama i ka mālama pilikino ʻana i mea nui
• E hōʻole i nā ʻano maikaʻi ʻole
• E mālama i kahi puke pai
• E ʻike i ka manawa e ʻike ai i kāu kauka

ʻO ka porphyria hepatic huehue (AHP) kahi maʻi koko laha ʻole kahi i lawa ʻole ai nā heʻula o kou kokoʻulaʻula heme e hana hemoglobin. Loaʻa nā ʻano lapaʻau like ʻole no nā ʻōuli o kahi hoʻouka AHP e hōʻoluʻolu ai iā ʻoe a pale i nā pilikia. Eia nō naʻe, ʻo ke ala maikaʻi loa e mālama ai i kāu AHP e ʻike i kāu mau mea hōʻalo a pale iā lākou ke hiki.

ʻIke i nā mea hoʻonāukiuki maʻamau

Inā ʻike hou ʻia ʻoe me ka AHP, ʻaʻole paha ʻoe e ʻike i ka mea e hoʻomaka ai kāu hōʻeha AHP. ʻO ka ʻike ʻana i kekahi o nā mea hoʻonāukiuki maʻamau hiki ke kōkua iā ʻoe e hōʻalo iā lākou i ka wā e hiki mai ana a pale i nā hoʻouka.

Pili kekahi mau mea hoʻoheheʻe i nā mea hoʻopili a me nā lāʻau - e like me nā mea hao a me nā hormones. ʻO nā mea hoʻonāukiuki ʻē aʻe he kūlana olakino, e like me ka maʻi. Hiki i ke kaumaha lōʻihi a i ʻole kahi hanana kaumaha kiʻekiʻe ke hiki ke hoʻomaka i kahi hoʻouka AHP.

Pili nā mea hoʻohuli AHP ʻē aʻe i nā ʻano nohona. Pākuʻi ʻia kēia mau mea:

• ʻai pāʻina ʻana
• ke kū nui ʻana o ka lā (e like me ka hana ʻiliʻili)
• hoʻokē ʻai
• inu rama
• hoʻohana paka

Hiki i ka Menstruation i nā wahine ke hoʻomaka i kahi hoʻouka kaua AHP. ʻOiai ʻaʻole hiki ke alo ʻia, hāʻawi paha kāu kauka iā ʻoe i kekahi lāʻau i mua o ka hoʻomaka ʻana o kāu pōʻaiapuni.

E pāpālua i kāu meds

Hiki i kekahi mau lāʻau ke hoʻololi i ke ʻano o ka hana ʻana o nā hunaola ʻulaʻula, e hana ana i nā hōʻailona AHP ʻoi aku ka maikaʻi. ʻO kekahi o nā lawehala maʻamau ka:

• pākuʻi hao
• mea kanu
• nā pani hormonone (me ka kaohi hānau)
• multivitamins

E haʻi i kāu kauka e pili ana i nā mea kōkua a me nā lāʻau āu e lawe ai, ʻoiai inā he over-the-counter lākou. ʻOi aku paha nā lāʻau lapaʻau kolohe ʻole e hoʻāla i nā hōʻailona AHP.

Pale i ka make ʻana i ka ʻai

ʻO kaʻai ʻana he ala maʻamau ia e lilo ai ke kaupaona, akā hiki i ka make ʻana ke make loa ke hoʻomaka i nā ʻōuli AHP. Hiki i ka hoʻokēʻai ke kumu i nā ʻōuli ʻoi loa.

ʻAʻohe mea e like me ka papaʻai AHP, akā ʻo ka ʻai ʻana i nā calorie liʻiliʻi a me ka ʻai iki ʻana i kekahi mau meaʻai hiki ke kōkua iā ʻoe e hōʻalo i nā hoʻouka. Wahi a ka American Porphyria Foundation, nā lawehala maʻamau o nā hōʻailona AHP e pili pū me nā pua o Brussels, kāpiki, a me nā ʻai i kuke ʻia i nā pānahu a nā moa paha. Eia naʻe, ʻaʻole kahi papa inoa ākea. Inā manaʻo ʻoe ua hōʻino kekahi mau meaʻai i kāu AHP, e hoʻāʻo e hōʻalo iā lākou.

E hana i nā kaʻi keu e hōʻalo i ka maʻi

Ke maʻi ʻoe, hoʻonui ka helu o kou koko keʻokeʻo e kaua aku i nā koʻohune a me nā mea hoʻomaʻi ʻino. A ʻo kahi hopena, e ʻoi aku nā aʻa koko keʻokeʻo i ka nui o nā hunaola ʻulaʻula olakino. Ke hemahema mua ʻoe i nā hunaola ʻulaʻula, hiki i ka hoʻonui ʻia ʻana o ka maʻi i hoʻokomo ʻia i nā hunaola keokeo ke hoʻonāuki i kāu mau hōʻailona AHP.

ʻO kekahi o nā ala maikaʻi e hōʻalo ai i kahi hoʻouka kaua ʻo AHP ka pale ʻana i nā maʻi e like me ka hiki. ʻOiai ʻaʻole hiki ke hōʻalo ke anu anuanu i kekahi manawa, e hana i ka mea maikaʻi loa e pale ai i ka hopu ʻana i nā g germ. E hāhai i kēia mau hana maikaʻi loa:

• E holoi pinepine i kou mau lima.
• E hiamoe nui.
• Hōʻalo i nā mea maʻi ʻē aʻe.

ʻAʻole hiki i nā maʻi ke hoʻonāuki wale iā AHP, akā hiki iā lākou ke hana i ke ola hou ʻana i mea paʻakikī, e hoʻonui ana i kou makaʻi no nā pilikia.

Hōʻalo i ka puka ʻana o ka lā

ʻO ka mālamalama o ka lā kahi mea maʻamau o AHP. ʻO nā ʻōuli o kahi hopena i ka lā e kū mau i kou ʻili a komo pū paha me ka palapū. ʻIke paha ʻoe i kēia ma nā ʻāpana o kou kino e loaʻa ka hapanui o ka lā, e like me ka maka, ka umauma, a me nā lima.

ʻAʻole kēia manaʻo ʻaʻole hiki iā ʻoe ke hele i waho i ka wā o ke ao. Akā pono ʻoe e hoʻāʻo e pale i ka lā ke hiki i kona ikaika kiʻekiʻe. ʻO ka maʻamau kēia i ke kakahiaka nui a i ke kakahiaka nui. E komo i ka pale lā i kēlā me kēia lā a e pāpale i ka pāpale a me nā lole pale ke hele ʻoe ma waho.

Pono ʻoe e hōʻalo i kahi hōʻike kukuna UV kūpono ʻole. Pono ʻoe e hōʻalo i nā moena ʻili a me ka hoʻomoe ʻana i nā kukuna lā kūlohelohe me ka manaʻolana e kiʻi i kahi ʻili, keu hoʻi inā he AHP kou.

E mālama i ka mālama pilikino ʻana i mea nui

ʻO ka mālama pilikino pono ke lawe i ka manawa e nānā i kou olakino, manaʻo, a me kou olakino noʻonoʻo. Hiki i kēia ke hoʻopili i ka ʻai olakino a me ka hoʻoikaika kino. Hiki i ka mālama pilikino ke kōkua i ka hōʻemi ʻana i ke koʻikoʻi, ʻo ia kekahi o nā kī nui o AHP.

I ka hoʻomaha ʻana i nā ʻōuli, hiki i ka mālama ponoʻī ʻana ke hoʻemi i ka ʻeha mau. Hiki i ka Yoga, ka noʻonoʻo ʻana, a me nā hana e kia nui ai ke aʻo iā ʻoe pehea e kū ai i ka ʻeha a me nā hōʻailona AHP ʻoluʻolu ʻē aʻe.

E hōʻole i nā ʻano maikaʻi ʻole

Hiki i nā ʻano nohona ola ʻole ke hoʻonui i nā hōʻailona AHP a me nā pilikia. ʻO kahi laʻana, e hōʻalo i ka inu waiʻona nui. Hoʻopuka ka waiʻona i nā hoʻouka a hiki ke hōʻino i ke ake akepone. ʻO ka hōʻino o ke akepaʻa kekahi o nā pilikia lōʻihi o ka AHP, e like me ka Mayo Clinic. ʻO ka maikaʻi ʻole o ka hakuʻala a me ka ʻeha mau kekahi ʻelua.

Pono ʻoe e hōʻole i ka puhipaka a me ka lawe ʻana i nā lāʻau i nā lāʻau lapaʻau ʻole. Hoʻopili kēia mau mea i kou kino i nā ʻano like ʻole a hiki ke hoʻopau hou i ka oxygen i kou mau ʻulaʻula e pono e mālama i kāu mau aʻa a me nā meaola.

E mālama i kahi puke pai

He mea nui ka ʻike ʻana i nā trigger maʻamau o AHP. Akā he aha kāu mea hoʻoulu? ʻAʻole like nā mea like me ka poʻe AHP, no laila ke aʻo ʻana i kāu iho hiki ke hoʻololi i ka mālama ʻana a me ka mālama ʻana i kāu kūlana.

ʻO ka hoʻopaʻa ʻana i kāu mau ʻōuli i loko o kahi puke pai kahi ala maikaʻi loa e kōkua ai iā ʻoe e ʻike i kāu mau hopena AHP. Hiki iā ʻoe ke mālama i kahi pukeʻai meaʻai e kōkua ai i ka hoʻoholo ʻana i nā kumu papaʻai o nā hōʻailona AHP. E mālama i kahi papa inoa o kāu mau meaʻai a me nā hana i hiki ai iā ʻoe ke lawe i kāu puke pai i kāu kau kauka e hiki mai ana.

E ʻike i ka manawa e ʻike ai i kāu kauka

Ke pale aku nei i nā mea hoʻomaka ʻo AHP e hele lōʻihi i ka mālama ʻana i kāu kūlana. Akā i kekahi manawa ʻaʻole hiki iā ʻoe ke hōʻalo i kahi mea hoʻonāukiuki. Inā manaʻo ʻoe he hoʻouka kaua kāu, kāhea koke aku i kāu kauka. Pono paha lākou e lawelawe i ka heme synthetic i kā lākou keʻena. I nā hihia ʻoi aku ka maikaʻi, pono ʻoe e hele i ka haukapila.

Nā hōʻailona o kahi hoʻouka kaua AHP:

• abdominal eha
• hopohopo
• nā pilikia hanu
• ʻeha ka umauma
• mimi ʻeleʻele-ʻeleʻele (brown a ʻulaʻula)
• palpitations puʻuwai
• kahe koko kiʻekiʻe
• ʻeha ʻeha
• nausea
• ka luaʻi
• paranoia
• ka hopu ʻana

Kāhea i kāu kauka inā ʻike ʻoe i kēia mau hōʻailona. Inā loaʻa iā ʻoe ka ʻeha nui, nā loli noʻonoʻo nui a i ʻole ka hopu ʻana, e ʻimi i ka mālama olakino olakino.