Hey Girl: ʻAʻole Pain Normal

E ka makamaka,

He 26 koʻu mau makahiki i ka manawa mua wau i ʻike i nā ʻōuli endometriosis. E hoʻokele ana wau i ka hana (kahu hānai au) a ua ʻeha ʻeha maoli au ma ka ʻaoʻao ʻākau o luna o koʻu ʻōpū, ma lalo pono o koʻu iwi ʻaoʻao. He ʻeha, ʻeha kuʻi ia. ʻO ia kaʻeha nui loa aʻu i ʻike ai; ua lawe koʻu hanu.

I koʻu hiki ʻana i ka hana, hoʻouna lākou iaʻu i ka lumi pilikia a holo i kahi hui o nā hoʻokolohua. I ka hopena, hāʻawi lākou iaʻu i nā lāʻau ʻeha a haʻi mai iaʻu e ukali me kaʻu OB-GYN. Ua hana wau, akā ʻaʻole maopopo iā ia kahi o ka ʻeha a haʻi wale iaʻu e nānā pono iā ia.

He mau mahina kēia i loko o kēia ʻeha e hele mai ana a ʻike wau e hoʻomaka ana ma kahi o ʻehā mau lā ma mua o koʻu manawa a kū ma kahi o ʻehā mau lā ma hope ona. Ma hope o hoʻokahi makahiki, ua lilo ia i mea pinepine, a ʻike wau ʻaʻole maʻamau. Ua hoʻoholo wau ua hiki i ka manawa e loaʻa ai ka manaʻo ʻelua.

Ua nīnau mai kēia OB-GYN iaʻu i nā nīnau kikoʻī hou aʻe: no ka laʻana, inā ua ʻike wau i ka ʻeha me ka wahine. (ʻO kaʻu mea i loaʻa ai, ʻaʻole wau i manaʻo ua pili nā mea ʻelua. Ua manaʻo wale wau ʻo wau kekahi i ʻeha me ka moekolohe.) A laila ua nīnau ʻo ia iaʻu inā ua lohe mua wau i ka endometriosis; He kahu hānai wau no ʻewalu mau makahiki, akā ʻo kēia ka manawa mua aʻu i lohe ai.

ʻAʻole ʻo ia i hana e like me he mea nui lā, no laila ʻaʻole wau i ʻike he hoʻokahi. Me he mea lā e haʻi ana iaʻu ua loaʻa wau i ka maʻi ʻaʻai. Ua hāʻawi ʻia wau i ka hānau hānau a me ka ibuprofen e hoʻokele i nā ʻōuli, a ʻo ia nō ia. ʻOluʻolu ke loaʻa kahi inoa no ia. ʻO ia ka mea e hōʻoluʻolu iaʻu.

Ke nānā nei i hope, ʻakaʻaka wau i ka noʻonoʻo ʻana i kāna ʻano maʻamau e pili ana iā ia. ʻOi aku ka nui o kēia maʻi ma mua o kāna hana ʻana. Makemake wau i ke kamaʻilio hohonu ʻana; a laila ua hana wau i ka noiʻi hou a nānā pono i kaʻu mau ʻōuli.

Ma hope o ʻelua mau makahiki o nā ʻōuli, ua hoʻoholo wau e ʻimi i kahi manaʻo ʻekolu a hele aku e ʻike i kahi OB-GYN i ʻōlelo ʻia iaʻu. I ka wā aʻu i haʻi aku ai iā ia e pili ana i kaʻu mau ʻōuli (ʻeha ma ka ʻaoʻao ʻākau o luna o kuʻu ʻōpū), ua haʻi ʻo ia iaʻu no ka loaʻa ʻana o ka endo i loko o ka lua o koʻu umauma (ʻo ia wale nō ka hapa liʻiliʻi o nā wahine i loaʻa). Ua kuhikuhi ʻo ia iaʻu i kahi kauka, a he ʻewalu mau biopsies kaʻu i hana ai. Ua hoʻi mai kahi mea maikaʻi no ka endometriosis - {textend} kaʻu ʻike luna mua loa.

Ma hope o kēlā, ua kau ʻia wau e leuprolide (Lupron), kahi e hoʻokau iā ʻoe i ka menopause i hoʻokomo ʻia e ka lāʻau. E hoʻolālā ʻia ka hoʻolālā ma luna o ia no ʻeono mau mahina, akā maikaʻi ʻole nā ​​ʻaoʻao a ua ʻae wau i ka ʻekolu.

ʻAʻole wau i maikaʻi. Inā he mea, ua ʻoi aku ka maikaʻi o kaʻu mau ʻōuli. ʻIke wau i nā pilikia constipation a me ka gastrointestinal (GI), nausea, bloating. A ʻo ka ʻeha me ka moekolohe i loaʻa he miliona mau manawa i ʻoi aku ka maikaʻi. ʻO ka ʻeha ma ka ʻaoʻao ʻākau ma luna o kuʻu ʻōpū i lilo i pōkole o ka hanu, a me he mea lā e hemo ana wau. Maikaʻi loa nā ʻōuli a kau ʻia wau i ke kīnā kino mai ka hana.

Kupanaha ka mea a kou manaʻo e hana ai iā ʻoe ke ʻimi nei ʻoe i kahi kuhi. Lilo ia i kāu hana. I kēlā manawa, ua haʻi maʻamau kaʻu OB-GYN iaʻu ʻaʻole ia i ʻike i ka mea e hana ai naʻu. Ua haʻi mai kaʻu pulmonologist iaʻu e hoʻāʻo i ka acupuncture. Ua hōʻea i kēia wahi kahi o ko lākou ʻano: E ʻike i kahi ala e kū ai i kēia no ka mea ʻaʻole maopopo iā mākou he aha ia.

ʻO ia ka manawa i hoʻomaka wau e hana noiʻi. Ua hoʻomaka wau me kahi hulina maʻalahi ʻo Google e pili ana i ka maʻi a aʻo ʻia ʻo nā hormones aʻu e noho nei ma ke ʻano he kaula wale nō. Ua ʻike wau aia he loea no ka endometriosis.

A ua loaʻa iaʻu kahi ʻaoʻao endometriosis ma Facebook (i kapa ʻia ʻo Nancy's Nook) e hoʻopakele ai i koʻu ola. Ma kēlā ʻaoʻao, ua heluhelu au i nā manaʻo mai nā wahine i ʻike i ka ʻeha o ka umauma like. Ua alakaʻi ʻia kēia iaʻu e ʻike e pili ana i ka loea ma Atlanta. Ua huakaʻi wau mai Los Angeles aku e ʻike iā ia. Nui nā wahine ʻaʻohe loea i kūloko iā lākou a pono e huakaʻi e ʻike i ka mālama maikaʻi.

ʻAʻole hoʻolohe kēia loea i kaʻu moʻolelo me ke aloha nui, akā ua kōkua maikaʻi hoʻi e mālama i ke ʻano me ke kahakaha excision. ʻO kēia ʻano ʻoki kino ka mea kokoke loa iā mākou e hoʻōla ai i kēia manawa.

Inā he wahine ʻoe i manaʻo e ʻeha ʻo ia i kēia maʻi i ka hāmau, ke noi aku nei wau iā ʻoe e aʻo iā ʻoe iho a kikoo aku i nā hui. ʻAʻole maʻamau ka ʻeha; 'o kou kino e haʻi ana iāʻoe he hewa. Nui a hewahewa nā mea hana i loaʻa iā mākou i kēia manawa. E hoʻomākaukau iā ʻoe iho me nā nīnau e nīnau ai i kāu kauka.

He mea nui ka hāpai ʻana i ka ʻike no kēia ʻano. He mea nui ke kamaʻilio ʻana e pili ana i ka endometriosis. He mea kupaianaha ka nui o nā wahine e pili ana i kēia ʻano, a ʻo ka nele o ka lapaʻau ʻana he aneane hewa. He kuleana kā mākou e ʻōlelo ʻaʻole maikaʻi ia, a ʻaʻole mākou e hoʻokuʻu iā ia e maikaʻi.

Me ka ʻoiaʻiʻo,

ʻO Jenneh

He kahu wahine i kākau inoa ʻia ʻo 31-makahiki nona ka makahiki he 10 mau makahiki e hana ana a noho ana ma Los Angeles. Ke holo nei kāna mau kuko, ke kākau ʻana, a me ka hana aʻoaʻo aʻoaʻo endometriosis e ʻO ka Endometriosis Coalition.