Ke ʻike nei i ke kākoʻo ʻana ma ka pūnaewele: Nā Blog Myeloma Multiple, Nā Kūkākūkā, a me nā Papa Leka

Anter

• He aha ke kolamu?
• Nā kolamu myeloma maha a me nā papa leka
• Nā blog myeloma maha
• Lawe aku

ʻO ka myeloma maha he maʻi maʻamau. ʻO 1 wale nō o kēlā me kēia 132 poʻe e loaʻa i kēia maʻi ʻaʻai i ko lākou ola. Inā ua hōʻoia ʻia ʻoe me ka myeloma he nui, he mea hiki ke hoʻomaopopo ʻia i kahi mehameha a luʻuluʻu paha.

Ke loaʻa ʻole kahi mea e pane i kāu mau nīnau i kēlā me kēia lā a i ʻole kekahi e kaʻana like i kāu mau makaʻu a me nā haʻalulu, hiki iā ia ke manaʻo he kaʻawale loa. ʻO kahi ala e ʻike ai i ka hōʻoia a me ke kākoʻo ʻana ma ke kipa ʻana aku i kahi myeloma maha a i ʻole ka hui kākoʻo maʻi ʻaʻai nui. Inā ʻaʻohe hui kākoʻo kahi āu e noho ai a i ʻole makemake ʻoe e huakaʻi, hiki iā ʻoe ke ʻike i ka hōʻoluʻolu a me ke kaiāulu āu e ʻimi nei i kahi kūkā pūnaewele.

He aha ke kolamu?

ʻO kahi kolamu kahi hui kūkā pūnaewele a i ʻole kahi papa kahi e kau ai nā poʻe i nā leka e pili ana i kekahi kumuhana. Hoʻohui ʻia kēlā me kēia leka a me kāna mau pane i kahi kamaʻilio hoʻokahi. Kapa ʻia kēia he pae.

Ma kahi kolamu no ka myeloma he nui, hiki iā ʻoe ke nīnau i kahi nīnau, kaʻana like i nā moʻolelo pilikino, a i ʻole kiʻi i nā nūhou hou loa e pili ana i ka mālama ʻana i ka myeloma. Hoʻokaʻawale ʻia nā kumuhana i nā ʻāpana. ʻO kahi laʻana, e puhi ana i ka myeloma, nā nīnau ʻinikua, a i ʻole nā ​​kūkala hālāwai hui kākoʻo.

ʻOkoʻa kahi ʻaha kūkā mai kahi lumi kamaʻilio i ka waihona o nā leka. Inā ʻaʻole ʻoe ma ka pūnaewele ke kau kekahi i kahi nīnau a pane paha i kekahi o kāu mau nīnau, hiki iā ʻoe ke heluhelu ma hope.

ʻAe kekahi mau kolamu iā ʻoe e lilo i inoa inoa ʻole. Koi aku kekahi iā ʻoe e ʻeʻe me kahi leka uila a me ka ʻōlelo huna. ʻO ka maʻamau, nānā ka mea moderator i ka ʻike i loko e hōʻoia he kūpono a palekana ia.

Nā kolamu myeloma maha a me nā papa leka

Eia kekahi mau kolamu myeloma maikaʻi he nui e kipa aku ai:

• Pūnaewele Ola Ola Kanesa. Hāʻawi ka ʻAmelika Hui Pū ʻIa ʻAmelika i kēia papa kūkā no nā poʻe me ka myeloma he nui a me ko lākou mau ʻohana.
• Maʻi Maʻalea.He kumuwaiwai kēia kolamu pūnaewele no ka poʻe i hoʻopilikia ʻia e nā ʻano olakino like ʻole, e like me ka myeloma maha.
• ʻO ka Myeloma Beacon. ʻO kēia kolamu, i paʻi ʻia e kahi hui kōkua ʻole ma Pennsylvania, ke hāʻawi nei i ka ʻike a me ke kākoʻo i ka poʻe me myeloma he nui mai ka makahiki 2008.
• ʻO nā mea maʻi e like me aʻu. Uhi kēia pūnaewele i nā ʻano olakino ma kahi o 3,000 a ʻoi aku ma mua o 650,000 o nā poʻe komo e kaʻana like ana i ka ʻike.

Nā blog myeloma maha

ʻO kahi blog kahi pūnaewele e like me ka puke pai kahi kanaka, kahi hui ʻona ʻole, a i ʻole ka hui e kau i nā ʻatikala ʻike pōkole i kahi kaina kamaʻilio. Hoʻohana nā ʻoihana maʻi ʻaukala i nā blog e mālama i kā lākou mau mea maʻi e pili ana i nā hoʻoponopono hou a me nā ʻohi kālā. Kākau ka poʻe me ka myeloma he nui i nā blog ma ke ʻano e kaʻana like i ko lākou ʻike, a e hāʻawi i ka ʻike a me ka manaʻolana i ka poʻe i ʻike hou ʻia.

Ke heluhelu ʻoe i kahi blog, e noʻonoʻo ʻaʻole paha lākou e loiloi ʻia no ka pololei olakino. Hiki i kekahi ke kākau i kahi blog. Hiki ke paʻakikī ke ʻike inā he ʻike olakino ka ʻike āu e heluhelu nei.

E ʻike paha ʻoe i ka ʻike pololei ma ka blog mai kahi hui maʻi ʻaʻai, kulanui, a i ʻole ʻoihana lapaʻau e like me ke kauka a kahu maʻi ʻaʻai paha ma mua o ka mea i kau ʻia e kahi kanaka. Akā hiki i nā blog pilikino ke hāʻawi i kahi ʻano waiwai o ka hōʻoluʻolu a me ke aloha.

Eia kekahi mau blog i hoʻolaʻa ʻia i myeloma maha:

• Ka Waihona Myeloma International. ʻO kēia kahi ʻoihana myeloma nui ʻoi aku, me nā lālā o 525,000 ma mua o 140 mau ʻāina.
• ʻO Myeloma Research Foundation (MMRF) he nui. Hāʻawi ka MMRF i kahi blog kākau hoʻomanawanui ma kāna pūnaewele.
• ʻO Myeloma Crowd. He ʻaoʻao blog ko kēia mea kōkua ʻole hoʻomanawanui ʻia e hōʻike ana i nā moʻolelo e pili ana i nā hanana hōʻiliʻili kālā myeloma he nui a me nā nūhou ʻē aʻe.
• ʻIke mai Dana-Farber. Hoʻohana kekahi o nā kikowaena maʻi ʻaʻai nui o ka ʻāina i kāna blog e kaʻana like ai i nā nūhou e pili ana i ka holomua ʻana o ka noiʻi a me nā holomua holomua.
• MyelomaBlogs.org. Hoʻohui kēia pūnaewele i nā blog mai nā poʻe like ʻole me ka myeloma maha.
• ʻO Margaret's Corner. Ma kēia blog, kākau ʻo Margaret i nā hakakā o kēlā me kēia lā a me nā kūleʻa o ka noho ʻana me ka myeloma puhipaka. Ke hoʻomau nei ʻo ia i ka blog ʻana mai ka makahiki 2007.
• ʻO TimsWifesBlog. Ma hope o kāna kāne ʻo Tim, ua hōʻoia ʻia me ka myeloma he nui, ua hoʻoholo kēia wahine a me kona makuahine e kākau e pili ana i ko lākou ola "ma ka MM rollercoaster."
• Kelepona iā M no Myeloma. Ua hoʻomaka kēia blog ma ke ʻano he ala no ka mea kākau e mālama i ka ʻohana a me nā hoaaloha i kēia lā, akā ua lilo ia i kumuwaiwai no ka poʻe me kēia maʻi ʻaʻai a puni ka honua.

Lawe aku

Inā ʻoe e ʻike mehameha ana ma muli o kāu ʻike myeloma he nui, a i ʻole pono ʻoe i kahi ʻikepili e kōkua e hoʻokele iā ʻoe ma o ka mālama ʻana, e ʻike ʻoe ma kekahi o nā kolamu a me nā blog i loaʻa ma ka pūnaewele. Ke nānā nei ʻoe i kēia mau ʻaoʻao pūnaewele, e hoʻomanaʻo e hōʻoia i nā ʻike āu e ʻike ai ma kahi blog a i ʻole ka hālāwai me kāu kauka.