Scleroderma: he aha ia, nā ʻōuli a me nā lāʻau
Anter
ʻO Scleroderma kahi maʻi maʻi autoimmune mau kahi i hana nui ʻia ai ka collagen, e alakaʻi ana i ka paʻakikī o ka ʻili a pili i nā hono, nā mākala, nā kīʻaha koko a me nā mea kūloko, e like me nā mumū a me ka puʻuwai.
Hoʻopili nui kēia maʻi i nā wahine ma mua o 30, akā hiki ke hana ʻia i loko o nā kāne a me nā keiki, a ua māhele ʻia i ʻelua ʻano, scleroderma kūloko a me ka ʻōnaehana. ʻAʻohe lāʻau o Scleroderma a hana ʻia kāna mālama e hōʻoluʻolu i nā ʻōuli a lohi i ka holomua o ka maʻi.
Nā ʻōuli o Scleroderma
Hoʻololi nā ʻōuli o scleroderma i ka manawa a, e like me ka wahi o nā ʻōuli, hiki ke hoʻokaʻawale ʻia ka scleroderma i:
- ʻŌnaehana, kahi e hōʻike ʻia ai nā ʻōuli i loko o ka ʻili a me nā ʻāpana o loko, e manaʻo ʻia nei ke ʻano ʻoi loa o ka scleroderma;
- Kūloko, kahi e kapu ai nā ʻōuli i ka ʻili.
ʻO ka maʻamau, ʻo nā ʻōuli nui e pili ana i ka scleroderma:
- Ka mānoanoa a me ka ʻoʻoleʻa o ka ʻili;
- Ka pehu mau o nā manamana a me nā lima;
- Ka pouli o nā manamana i nā wahi anuanu a i ʻole nā wā o ke koʻikoʻi nui, i ʻike ʻia hoʻi me ko Raynaud hanana;
- ʻIke mau i ka ʻāpana i hoʻopili ʻia;
- Lilo ka lauoho;
- ʻEleʻele loa a mālamalama nā kiko ma ka ʻili;
- ʻO ka helehelena o nā kiko ʻulaʻula ma ka maka.
Hoʻomaka nā hōʻike mua o ka maʻi ma nā lima a ma hope o ka hala ʻana o nā mahina a i ʻole mau makahiki i ka helehelena, waiho ka ʻili o ka ʻili, me ka ʻole o ka lahilahi a me ka ʻole o nā ʻulupulu, kahi mea paʻakikī hoʻi e hāmo ka waha. Eia hou, i nā hihia o ka scleroderma ʻōnaehana, hiki i ke kanaka ke hoʻonui i ke kahe o ke koko, ka palupalu maikaʻi ʻole, ka hanu ʻana, ka pohō kaumaha me ke kumu ʻole, nā loli i ke ake a me ka puʻuwai.
Nā pilikia i hiki
Pili nā pilikia o ka scleroderma i ka hoʻomaka o ka mālama ʻana a ʻoi aku ka pinepine o ka ʻike ʻia i ka poʻe i loaʻa ka ʻano ʻōnaehana o ka maʻi. No laila, ke hana ʻole ʻia ka lāʻau e like me ke alakaʻi a ke kauka, hoʻomohala ke kanaka i kekahi mau pilikia e like me ka paʻakikī i ka neʻe ʻana o nā manamana lima, ka ale ʻana a me ka hanu ʻana, anemia, ka maʻi pākī, nā pilikia puʻuwai a me nā kōpaʻa ʻole, no ka laʻana.
Pehea e hana ʻia ai ke kuhi
He paʻakikī ka hōʻailona o scleroderma, no ka mea lohi ka lohi o nā ʻōuli a hiki ke huikau me nā pilikia ʻili ʻē aʻe. ʻO ka hōʻoia o ka maʻi e pono e hana ʻia e ka dermatologist a i ʻole ka rheumatologist, e noʻonoʻo ana i nā hōʻailona a me nā hōʻailona i hōʻike ʻia e ke kanaka, a me ka hopena o nā hōʻike kiʻi a me nā keʻena hoʻokolohua.
No laila, e hōʻike ʻia paha e ke kauka e hana i ka tomography a i ʻole ka pahu X-ray a me ka biopsy o ka ʻili, me ka hoʻokō ʻana i ka hoʻokolohua ANA, kahi hoʻokolohua hoʻokolohua e manaʻo e ʻike i ke alo o nā iho ponoʻī e holo ana i loko o ke koko.
Ka mālama ʻana i ka scleroderma
ʻAʻohe lāʻau hoʻōla a Scleroderma a, no laila, mālama ka mālama ʻana e pale i ka holomua o ka maʻi, hoʻomaha i nā ʻōuli a hāpai i ka ola o ke kanaka. Hiki ke loli ka lāʻau i hōʻike ʻia e ka rheumatologist a i ʻole dermatologist e like me ke ʻano o ka scleroderma a me nā ʻōuli i hōʻike ʻia e ke kanaka, a hōʻike ʻia ka hoʻohana ʻana i kekahi mau lāʻau e like me ka hihia, hiki ke hoʻopili pono ʻia i ka ʻili a i ʻole i ʻai ʻia, e like me immunosuppressants a i ʻole corticosteroids.
I ka hihia o ka poʻe e hōʻike nei i ko Raynaud hanana like me kekahi o nā ʻōuli o scleroderma, ua ʻōlelo ʻia hoʻi e mālama i nā ʻaoʻao o ke kino mehana.
Hoʻohui ʻia, no ka pili ʻana o ka scleroderma i ka ʻākeʻakeʻa, hiki ke hōʻike ʻia nā kau physiotherapy e hoʻonui i ka maʻalahi o ka hui, hoʻēmi i ka ʻeha, pale i nā ʻaelike a mālama i ka hana a me ka amplitude.