Hiki i nā Transplants Lung ke mālama iā Cystic Fibrosis?

Anter

• He aha nā pōmaikaʻi kūpono o kahi transplant lung?
• He aha nā makaʻi kūpono o kahi transplant lung?
• ʻO wai ka mea kūpono i kahi transplant lung?
• He aha ka mea e pili ana i kahi transplant lung?
• He aha ke ʻano o ka hoʻōla?
• He aha ke kuanaʻike?
• Nā ʻōlelo aʻoaʻo no ke kamaʻilio ʻana me kāu kauka

ʻO Cystic fibrosis a me nā transplants māmā

ʻO Cystic fibrosis kahi maʻi maʻi e hoʻokumu i ka mucus i loko o kou mau māmā. Ma hope o ka hala ʻana o ka manawa, hiki i nā kuʻi pinepine ʻana o ka lī a me ka maʻi ke kumu i nā pōʻino mau loa o ka māmā. Ke holo nei kou ʻano, e paʻakikī ka hanu ʻana a komo i nā hana āu e leʻaleʻa ai.

Hoʻohana ʻia nā transplants lung e mālama i nā cystic fibrosis. I ka 2014, 202 mau mea maʻi me ka cystic fibrosis i United States i loaʻa i kahi transplant lung, e like me ka Cystic Fibrosis Foundation (CFF).

Hiki i kahi transplant lung kūleʻa ke hana i kahi ʻokoʻa nui i kou manaʻo ma kēlā me kēia lā. ʻOiai ʻaʻole ia he lāʻau lapaʻau no ka cystic fibrosis, hiki iā ia ke hāʻawi iā ʻoe i ke ʻano olakino olakino olakino. Hiki i kēia ke ʻae iā ʻoe e hana i nā hana hou aʻe a hoʻolōʻihi ʻia i kou ola.

Nui nā mea e noʻonoʻo ai ma mua o ka loaʻa ʻana o kahi transplant lung. E hoʻomau i ka heluhelu ʻana e aʻo hou aʻe e pili ana i nā pono kūpono a me nā pilikia o ka ʻoki ʻana o ka transplant lung.

He aha nā pōmaikaʻi kūpono o kahi transplant lung?

Inā loaʻa iā ʻoe ka cystic fibrosis a hana maikaʻi ʻole kāu mau māmā, hiki iā ʻoe ke koho no kahi transplant lung. Loaʻa paha iā ʻoe ka pilikia e hanu a noho i nā hana āu i leʻaleʻa ai.

Hiki i kahi transplant lung holomua ke hoʻomaikaʻi i kou ʻano o ke ola ma nā ʻano kūlohelohe.

ʻO kahi māmā hou o ke olakino olakino e maʻalahi ke hanu. Hiki i kēia ke kōkua iā ʻoe e komo i nā leʻaleʻa punahele punahele āu.

He aha nā makaʻi kūpono o kahi transplant lung?

ʻO ka transplant lung kahi hana paʻakikī. ʻO kekahi o nā pilikia mua:

• ʻO ka hōʻole ʻana o nā ʻōnaehana: E mālama kāu ʻōnaehana pale i kāu māmā hāʻawi ma ke ʻano he haole a hoʻāʻo e luku iā lākou, ke ʻole ʻoe e lawe i nā lāʻau antirejection ʻOiai e hiki ke hōʻole ʻia ka ʻōpū i loko o nā mahina ʻeono mua ma hope o kou ʻoki ʻana, pono ʻoe e lawe i nā lāʻau antirejection e kāohi i kou ʻōnaehana paleʻea no ke koena o kou ola.
• Maʻiʻaʻai: Antirejection nā lāʻau e hoʻoliʻiliʻi i kāu ʻōnaehana pale, e hoʻonui ana i kou manawa o ka hoʻomōhala ʻana i nā maʻi.
• Nā maʻi ʻē aʻe: Ma muli o ke kaohi ʻana o nā lāʻau antirejection i kou ʻōnaehana pale, e piʻi pū nō hoʻi ʻoe i ka maʻi ʻaʻai, nā maʻi puʻupaʻa, a me nā kūlana ʻē aʻe.
• Nā pilikia me kāu mau kahawai: I kekahi manawa, hiki ke kapu ʻia ke kahe o ke koko mai kāu mau alaloa i kāu mau māmā hāʻawi. Hoola paha kēia komplication hiki iā ia iho, akā inā ʻaʻole, hiki ke mālama ʻia.

I nā kāne, hiki i nā lāʻau antirejection ke hōʻeha i nā hānau hānau i kā lākou keiki. Hiki paha i nā wahine i loaʻa i kahi transplant lung ke makaʻu i nā pilikia koʻikoʻi i ka wā hāpai.

ʻO wai ka mea kūpono i kahi transplant lung?

ʻAʻole kūpono nā kānaka āpau i kahi transplant lung. Pono kāu kauka e nānā i nā manawa kūpono e pōmaikaʻi ai ʻoe iā ia a hiki ke pili me kāu papa hana hoʻomalu. Hiki iā ia ke hala i mau hebedoma e loiloi ai i kāu hihia a hoʻoholo inā he moho kūpono kāu.

Pili paha kēia hana:

• Nā loiloi kino, me nā hoʻāʻo e loiloi ai i kāu baga, puʻuwai, a me nā hana puʻupaʻa. Hiki i kēia ke kōkua i kāu kauka e nānā i kāu pono no kahi transplant lung, a me kou maka o nā pilikia kūpono.
• Nā loiloi psychological, me nā kūkākūkā ʻana me kahi limahana kaiaulu a i ʻole therapist. Makemake paha kāu kauka, mea hana kaiaulu, a mea lapaʻau paha e hālāwai me kekahi o kou mau hoaaloha a me nā lālā o kou ʻohana e ʻike pono he ʻōnaehana kākoʻo maikaʻi kou a me ka hiki ke hoʻokele i kāu mālama post-op.
• Nā loiloi kālā e loiloi i kāu uhi olakino a kōkua iā ʻoe e hoʻoholo pehea ʻoe e uku ai no nā lilo o waho o ka ʻeke, ma ka wā pōkole a me ka wā lōʻihi.

Inā hoʻoholo kāu kauka he moho maikaʻi ʻoe, e hoʻohui ʻia ʻoe i ka papa inoa transplant lung. E aʻo ʻia ʻoe pehea e hoʻomākaukau ai no kāu ʻoki kino. Hiki iā ʻoe ke loaʻa i kahi kelepona e loaʻa nā māmā hāʻawi i kēlā me kēia manawa.

No nā poʻe i make iho nei nā māmā donor. Hoʻohana wale ʻia lākou ke loaʻa ke olakino.

He aha ka mea e pili ana i kahi transplant lung?

E hana i kahi transplant lung papalua, e hana paha kāu kime ʻokiʻoki i kahi ʻoki ākea ma lalo o kou umauma. Lawe lākou i kāu mau māmā i hōʻino ʻia a pani iā ​​lākou me nā māmā donor. E hoʻopili lākou i nā kīʻaha koko a me nā ala waena ma waena o kou kino a me kāu mau māmā hāʻawi. I kekahi mau hihia, hoʻohana paha lākou i ka mīkini bypass puʻuwai puʻuwai e mālama i ka oxygen e kahe ana i kou kino i kēia kaʻina hana.

E pani kāu hui ʻokiʻoki i kou umauma me ka hoʻohana ʻana i nā kuʻi a i ʻole staples. E hōʻaʻahu lākou i kou ʻehaʻoki, e waiho ana i kekahi mau paipu e ʻae i nā wai e kahe. Kūlohelohe kēia mau paipu. E hoʻokomo pū ʻia ʻoe i kahi pūkuhi hanu a hiki i kou manawa ke hanu me ka ʻole o ia.

Ma hope koke o kāu ʻoki ʻana, e nānā ʻia ʻoe no ka hanu ʻana, ka puʻuwai puʻuwai, ke kahe o ke koko, a me nā pae oxygen. Ke holo nei nā mea āpau i kahi ala kūpono, e hoʻoneʻe ʻia ʻoe mai ka mālama koʻikoʻi. E hoʻomau ʻoe e kiaʻi pono ʻia ke ola hou ʻoe. E hele ʻoe i nā hoʻokolohua koko manawa e aʻo ai i ke ʻano o ka hana ʻana o kou mau māmā, nā puʻupaʻa, a me ke akepaʻa.

E hala paha i kahi hebedoma a ʻelua paha kāu noho ʻana ma ka haukapila, e like me ka maikaʻi o kāu hana. Ma mua o kou hoʻokuʻu ʻia ʻana, pono i kāu hui ʻokiʻoki e hāʻawi iā ʻoe i nā ʻōkuhi pehea e mālama ai i kāu ʻokiʻoki a hoʻonui i kou ola ʻana ma ka home.

He aha ke ʻano o ka hoʻōla?

ʻO kahi transplant lung kahi hana nui. Hiki iā ia ke hala i mau mahina e ola hou mai ia.

Pono i kāu hui ʻoki lāʻau e hāʻawi i nā kuhikuhi piha no kāu mālama home. ʻO kahi laʻana, pono lākou e aʻo iā ʻoe pehea e hoʻomaʻemaʻe ai i kāu ʻokiʻoki a maloʻo a hiki i ka hemo ʻana o kāu mau kuʻi. E aʻo pū lākou iā ʻoe pehea e ʻike ai i nā hōʻailona o ka maʻi.

E piʻi ka makaʻu nui o ka maʻi ma muli o nā lāʻau antirejection e pono ai ʻoe e lawe ma hope o kahi transplant lung. Inā loaʻa iā ʻoe kekahi o kēia mau ʻōuli, e kāhea koke aku i kāu kauka:

• ke kuni o 100.4 ° F a ʻoi paha
• kahe mai nā wai mai kāu ʻokiʻoki
• ke kaumaha nei i ka ʻeha ma kāu pūnaewele incision
• pōkole o ka hanu a i ʻole pilikia ka hanu ʻana

Hiki paha iā ʻoe ke kipa pinepine i nā kauka i ka makahiki e hiki mai ana i kāu ʻoki transplant lung. E kauoha paha kāu kauka i nā hoʻokolohua e nānā i kāu ola hou ʻana, e like me:

• hoʻāʻo koko
• nā hoʻāʻo hana lung
• umauma X-ray
• bronchoscopy, kahi hoʻokolokolo o kāu mau kahawai e hoʻohana ana i kahi paipu lahilahi lōʻihi

Inā kūleʻa kāu transplant lung, loaʻa iā ʻoe kahi set of lung hou e ʻoi aku ka maikaʻi ma mua o kāu mau māmā kahiko, akā e loaʻa nō iā ʻoe ka cystic fibrosis. ʻO ia ka mea e pono ʻoe e hoʻomau i kāu hoʻolālā hoʻomaʻemaʻe cystic fibrosis a kipa pinepine i kāu kauka.

He aha ke kuanaʻike?

E hilinaʻi kou kuanaʻike pākahi i kou mau makahiki a me ka maikaʻi o ka hoʻololi o kou kino i kāu transplant lung.

Ma ʻAmelika Hui Pū ʻIa, ʻoi aku ma mua o 80 pākēneka o ka poʻe me ka cystic fibrosis i loaʻa kahi transplant lung e ola ana ma hope o hoʻokahi makahiki ma hope o kā lākou kaʻina hana, hōʻike ka CFF. Ma mua o ka hapalua ola ma mua o ʻelima mau makahiki.

ʻO kahi noiʻi Kanada i paʻi ʻia ma 2015 i ka Ka Puke Pai o ka Puʻuwai a me ka Lung Transplantation i ʻike ʻia i ka helu ola ola ʻelima mau makahiki no nā mea maʻi cystic fibrosis ma hope o kahi transplant lung he 67 pākēneka. Kanalima pakeneka e ola 10 makahiki a ʻoi paha.

Hiki i kahi transplant lung holomua ke hoʻololi i kou ola ma ka hoʻopau ʻana i kāu mau ʻōuli a ʻae iā ʻoe e ʻeleu i ka hana.

Nā ʻōlelo aʻoaʻo no ke kamaʻilio ʻana me kāu kauka

Ke noʻonoʻo nei i kahi transplant lung, e nīnau i kāu kauka inā ʻimi mua ʻia nā koho ʻē aʻe āpau. E noi iā lākou e kōkua iā ʻoe e hoʻomaopopo i nā pōmaikaʻi kūpono a me nā pilikia o kahi transplant. E nīnau i kāu mea e manaʻo ai inā ʻaʻole ʻoe e koho no ka transplant.

I ka manawa e ʻoluʻolu ai me ka manaʻo o kahi transplant lung, ua hiki i ka manawa e aʻo hou e pili ana i nā mea e hiki mai ana. Ke hele nei ʻoe ma ka papa transplant, pono ʻoe e mākaukau no ke kāhea ʻana i ka hōʻea ʻana o kāu mau māmā hāʻawi, ʻaʻohe mea ke hiki mai.

Eia kekahi mau nīnau e hoʻomaka ai ke kamaʻilio me kāu kauka.

• He aha kaʻu e pono ai e ʻike a hana ʻoiai wau ma ka papa inoa kali?
• He aha nā hoʻomākaukau e pono ai iaʻu e hana no ka wā e loaʻa ai nā māmā?
• ʻO wai ka mea e hana i ka kime transplant lung a he aha ko lākou ʻike?
• Pehea ka lōʻihi e pono ai wau e noho i ka haukapila ma hope o ke kaha ʻana?
• He aha nā lāʻau e pono ai wau e lawe ma hope o ke kahakaha ʻana?
• Ma hope o ke kahakaha ʻana, he aha nā hōʻailona e pono ai iaʻu e ʻike i ke kauka?
• ʻEhia mau manawa e pono ai wau e ukali a he aha ka hoʻokolohua e pili ai?
• He aha ke ʻano o ka hoʻōla a he aha kaʻu nānā lōʻihi?

E waiho i nā pane a kāu kauka e alakaʻi ai iā ʻoe i nā nīnau hohonu hou aʻe.