ʻO nā helu ola a me Outlook no ka maʻi Lymphocytic Leukemia

Anter

• Ka helu ola no ka maʻi leukemia lymphocytic mau
• Nā kumu e hoʻohuli i ka nānā ʻana no ka leukemia lymphocytic mau
• Ua kokoke mākou i kahi lāʻau ola?
• Ka pale ʻana a me ke kākoʻo ʻana no ka leukemia lymphocytic mau
• Hōʻike i kou mau manaʻo
• E aʻo iā ʻoe iho
• E hooikaika
• E lawe i kou manaʻo mai kāu maʻi

Leukemia lymphocytic mau

ʻO ka leukemia lymphocytic mau (CLL) kahi ʻano o ke kanesa e pili ana i ke koko a me ka iwi o ka iwi. ʻO ka iwi iwi kahi mea palupalu, spongy i loko o nā iwi e hana i nā huna koko. ʻO CLL ka hopena o nā hoʻololi kūpili like ʻole i ka DNA o nā hunaola e hoʻohua i ke koko. ʻAʻole ʻike ʻia ke kumu kūpono o kēia mau hoʻololi ʻana. Hana ʻia kēia mau loli DNA ma ke ʻano o ke ola, ma mua o nā loli ʻano ʻē aʻe i hoʻoili ʻia ma mua o ka hānau ʻana.

Inā loaʻa iā CLL, hana ka iwi o kou iwi i nā lymphocytes he nui - kahi ʻano o ke keʻokeʻo keʻokeʻo. ʻAʻole holo pono kēia mau lymphocytes. Hoʻopilikia lākou i nā pilikia hou aʻe ma ke kiʻi ʻana i nā hunaola koko ʻē aʻe e hua ʻia.

Hiki ke loli nā ʻōuli o CLL ma muli o ke kahua a i ʻole ka nui o ka maʻi. ʻAʻole paha ʻoe e loaʻa i nā ʻōuli ma ka wanaʻao. Ke holo nei ka maʻi, hiki i nā ʻōuli ke hoʻopili ʻia:

• hoʻonui ʻia nā lymph node
• luhi
• fiva
• puhū pō
• Kaumaha emi
• nā maʻi pinepine
• hoʻopiha ʻōpū

E hana i kahi manawa me kāu kauka inā hoʻomohala ʻoe i kekahi o nā hōʻailona ma luna. ʻO ka loaʻa koke o kahi hōʻailona, ​​ʻo ka maikaʻi o kāu kuana.

Ka helu ola no ka maʻi leukemia lymphocytic mau

ʻOi aku ka nui o ke ola o CLL ma mua o nā maʻi ʻino ʻē aʻe. ʻO ka helu ola ʻelima mau makahiki ma kahi o 83 pākēneka. ʻO ke kumu o kēia he 83 pakeneka o ka poʻe me ke ʻano e ola nei ʻelima mau makahiki ma hope o ka hōʻoia ʻana. Eia nō naʻe, i kēlā mau makahiki i hala ke 75, hāʻule ka helu ola ʻelima mau makahiki i lalo o 70 pākēneka. Ke hoʻomau nei ke aʻo ʻana o ka poʻe noiʻi e pili ana i ka CLL, ua akāka pehea ka paʻakikī e wānana i nā hopena. Nui a hewahewa nā mea e noʻonoʻo ai no ka mālama ʻana a me ke ola ʻana. Kūpikipiki nā hopena o kēlā me kēia kanaka me CLL i ka loaʻa ʻole a i ʻole ke kū ʻana o nā ʻano māka cell, e like me IGHV, CD38, a me ZAP70, a me nā loli kūʻē kikoʻī.

Wahi a ka National Cancer Institute, ma 2017 e manaʻo ʻia he 20,100 mau hihia hou o CLL ma United States. A e hoʻoili ʻia ka maʻi i 4,660 make ma 2017.

ʻOi aku ka nui o ka makaʻu o kekahi poʻe no ka hoʻomōhala ʻana iā CLL. ʻOi aku ka maʻi ma nā kāne ma mua o nā wahine, a ʻoi aku ka hopena i ka poʻe i piha nā makahiki he 60. ʻO ka ʻoiaʻiʻo, kokoke i ka 80 pākēneka o ka poʻe i hōʻike hou ʻia me CLL ma mua o 60 mau makahiki. E hoʻomohala hou aku paha nā Caucasians i kēia ʻano maʻi ʻaʻai.

Me ka lāhui a me nā kāne, ka moʻolelo o ka ʻohana o CLL a i ʻole nā ​​maʻi koko ʻē aʻe e hoʻonui ai i kou makaʻi. ʻO ka hōʻike ʻana i kekahi mau kemika e like me nā lāʻau make a me nā insecticides me he mea lā e hoʻonui i ka makaʻu pū kekahi.

Nā kumu e hoʻohuli i ka nānā ʻana no ka leukemia lymphocytic mau

Ma ke ʻano holoʻokoʻa, he kiʻekiʻe ola ke ola leukemia lymphocytic leukemia, akā nui nā mea i hoʻohuli i kou nānā. Hoʻopili kēia mau mea i ke kahua o ka maʻi a pehea ʻoe e pane ai i ka mālama ʻana, a me kekahi o nā māka pūnaewele a me nā genetics.

Ma hope o kahi kuhi, ʻo ka hopena aʻe ka hoʻonohonoho ʻana i ka maʻi. I kēia manawa aia ʻelua mau pūnaewele hoʻonohonoho i kahi no CLL: Rai a me Binet.

ʻO Rai ka mea maʻamau i ʻAmelika Hui Pū ʻIa, ʻoiai ʻo Binet e hoʻohana mau ʻia ma ʻEulopa. Hoʻohālikelike ʻo Rai staging i nā pae he 5 mai 0 a i ke 4. Kuhi ʻia ka pae 0 haʻahaʻa haʻahaʻa, manaʻo ʻia ka pae 1-2 i ka makaʻu waena, a manaʻo ʻia ka pae 3-4 kiʻekiʻe loa. ʻO ka makaʻu ka wikiwiki o ka maʻi e holomua. ʻO ke kiʻekiʻe o ka makaʻu, ʻoi aku ka wikiwiki o CLL e manaʻo e holomua. Hoʻohana ka ʻōnaehana Binet iā A, B, a me C.

Hoʻoholo ʻia ke kahua e pili ana i nā ʻano like ʻole e like me ka helu ʻana o ke koko a me ke komo ʻana o nā lymph node, ke ake, a me ka palapū. Wehe i nā laina kūkā kamaʻilio ma waena o ʻoe a me kāu loea o ka maʻi ʻaʻai, a i ʻole oncologist. He kumuwaiwai maikaʻi loa lākou no ka ʻike hou e pili ana i kāu mālama a mālama ʻana. Ma muli o ka paʻakikī o kēia maʻi, hiki iā lākou ke hāʻawi i ke alakaʻi e pili ana i kāu hihia CLL.

ʻAʻole pono ka hoʻomaʻamaʻa koke inā hopena nā hopena o kāu biopsy iwi iwi, nā hōʻike kiʻi, a me nā hoʻāʻo ʻana i ke koko e hōʻike i kahi pae mua me ka liʻiliʻi liʻiliʻi. ʻO ka makahiki, ka maʻi maʻi a me nā ʻōuli a pau i ke kuleana i ke kōkua ʻana e hoʻoholo i nā koho lapaʻau. Hōʻike ka Mayo Clinic ʻaʻohe mea hōʻoia e hoʻolōʻihi i ke ola o ka CLL pae mua. Ua haʻalele nā ​​kauka he nui i ka lāʻau lapaʻau i kēia wā mua i ʻike ʻole ka poʻe i nā hopena a me nā pilikia kūpono. I ka wā mua o nā kauka CLL e nānā mau i ka maʻi, a hoʻomaka wale i ka hoʻomaʻamaʻa ke holo.

Inā loaʻa iā ʻoe kahi pae holomua o CLL me ka nui aʻe o ka makaʻu, hiki i nā ʻano lāʻau like ʻole ke hoʻomaikaʻi i kāu helu ola. Hoʻopili maʻamau nā mālama ʻana i ka hui pū ʻana o nā lāʻau chemotherapy e pepehi i nā hunaola maʻi ʻaʻai. He moho paha ʻoe no ka hoʻoiho ʻana o ka iwi iwi iwi. I kēia kaʻina hana, e loaʻa iā ʻoe nā pūnaewele koʻokoʻo koko olakino olakino mai kahi mea hāʻawi. Hiki i kēia ke hoʻonāukiuki i ka hana ʻana o kāu mau hunaola olakino ponoʻī.

Ua kokoke mākou i kahi lāʻau ola?

I nā mea maʻi ʻōpio i mālama ʻole ʻia ma mua, i ke olakino olakino holoʻokoʻa, a i loaʻa i kekahi mau māka cellular maikaʻi, ʻo ka chemotherapy hoʻohui ʻia i kapa ʻia ʻo FCR (fludarabine, cyclophosphamide, rituximab) ua hōʻike i kahi hoʻohiki nui. Wahi a ka puke pai Blood, hiki i kēia lāʻau ke hoʻoulu i ke ola lōʻihi a malia paha he lāʻau no kekahi ʻano o nā kānaka.

ʻO ka pilikia, ʻaʻole no kēia poʻe kēia mālama ʻana. ʻO nā mea ma luna o 65 mau makahiki, nā kānaka me ka maikaʻi ʻole o ka hakuʻala, a me nā mea me nā ʻano olakino ʻē aʻe e ʻae ʻole i kēia lapaʻau. I kekahi poʻe, hiki ke hoʻonui i ka makaʻu o ka maʻi a me nā maʻi ʻaʻai ʻē aʻe.

Ka pale ʻana a me ke kākoʻo ʻana no ka leukemia lymphocytic mau

ʻO ka noho ʻana me ka maʻi ʻaʻai ke kumu o kahi ʻano o nā manaʻo like ʻole. ʻO kekahi mau lā e ʻike ʻoe i ka maikaʻi, a ʻo nā lā ʻē aʻe, ʻaʻole maikaʻi loa. I kekahi manawa hiki iā ʻoe ke hoʻokau, huhū, makaʻu, makaʻu, a me ka manaʻolana hoʻi. ʻOiai inā ʻoe i ka pae haʻahaʻa o CLL a loaʻa ʻole ka lāʻau, makaʻu paha ʻoe i ka holo ʻana o ka maʻi.

Hōʻike i kou mau manaʻo

Mai mālama i kou mau manaʻo i loko o ka ʻōmole. E mālama paha ʻoe i kou mau manaʻo iā ʻoe iho e pale aku i ka hoʻohoka ʻana i ka ʻohana a i ʻole nā ​​hoa aloha. Akā ʻo ka hōʻike ʻana i kou manaʻo he kī i ke kū ʻana i ka maʻi. E kamaʻilio me kahi lālā o ka ʻohana i hilinaʻi ʻia a i ʻole he hoaaloha no ka hōʻoia hou ʻana a me ke kākoʻo ʻana, a ʻae iā ʻoe iho e kaumaha. He maikaʻi ke uē. I ka hapanui o nā hihia, e ʻike ʻoe i ka maikaʻi ma hope o ka hoʻokuʻu i ka naʻau.

Inā hōʻoluʻolu ʻole ʻoe i ke kamaʻilio ʻana me nā poʻe ʻē aʻe e pili ana i kou kūlana, kākau i lalo i kou mau manaʻo i loko o kahi puke pai. E nīnau pū i kāu kauka e pili ana i nā pūʻulu kākoʻo maʻi ʻaʻai. A i ʻole hiki iā ʻoe ke ʻōlelo me kahi kākāʻōlelo e hana pū me nā poʻe me ka maʻi ʻaʻai.

E aʻo iā ʻoe iho

Hiki i kahi hōʻailona maʻi ʻaʻai ke hoʻoulu i ke koʻikoʻi a me ka hopohopo. Akā ʻo ka nui o kou ʻike a maopopo e pili ana i ke ʻano, e maʻalahi ka ʻae ʻana i kāu ʻoiaʻiʻo hou. Ke paipai nei ka ʻAhahui Kanaka ʻAmelika i kou kūpale iā ʻoe iho. Mai kali i kāu kauka e aʻo iā ʻoe ma CLL.

E noiʻi i ke kūlana a noho hou i kēia lā i nā ʻano hana hou loa i mea e nīnau ai i nā nīnau noʻonoʻo. Lawe i nā memo i ka wā o kāu kauka, a noi aku i kāu kauka e wehewehe i ka ʻike āu i maopopo ʻole ai. He mea nui nō hoʻi e ʻike i ka ʻike hilinaʻi ke nānā aku ma ka pūnaewele. E noi i kāu kauka no kahi ʻōlelo aʻoaʻo kahi e hiki ai iā ʻoe ke heluhelu hou aʻe e pili ana i kāu maʻi.

E hooikaika

ʻO ka hana kino kahi ala ʻē aʻe e kū ai me kahi kuhi CLL. He mea nui ka hoʻoikaika kino no ka mea hoʻonui ka hana i ka hana o endorphins i kou lolo. ʻO kēia nā hormoni "maikaʻi". Hoʻonui ka hoʻoikaika i kāu nānā i ka noʻonoʻo. Hiki iā ia ke hoʻonui i kāu ʻōnaehana pale maʻi a kōkua iā ʻoe e hakakā i ka maʻi. Hele hele wāwae a holo kaʻa paha, a i ʻole lawe i kahi papa yoga a i ʻole kekahi papa hoʻoikaika kino.

E lawe i kou manaʻo mai kāu maʻi

He paʻakikī paha e hoʻopau i kou noʻonoʻo mai ka maʻi ʻaʻai. ʻO kahi ala e kū ai ka ʻimi ʻana i nā hana leʻaleʻa e hiki ke kōkua iā ʻoe e hoʻomaha a hoʻomaha. E ʻimi i kahi leʻaleʻa, e like me ke paʻi kiʻi ʻana, nā kiʻi kiʻi, nā hulahula, a me nā mea hana lima. No ka hoʻomaha ʻana, e noʻonoʻo i ka noʻonoʻo ʻana i nā kiʻi. ʻAe kēia ʻenehana iā ʻoe e nānā i nā kiʻi maikaʻi e kōkua iā ʻoe e hoʻomaha a hoʻēmi i ke kaumaha. A ke loaʻa iā ʻoe kahi lā maikaʻi, e hoʻohana i kou ikehu e ola i ke ola piha, i hiki ke lawe i kou manaʻo mai kou olakino.