ʻO nā Blog Sclerosis Multiple Best ʻo 2020

Anter

• MultipleSclerosis.net
• Lawe ʻia kahi male ma MS
• ʻO kaʻu mau maʻamau hou
• Hoʻohui MS
• Kaikamahine me MS
• Nā kamaʻilio MS
• Nā Nūhou Sclerosis Multiple i kēia lā
• Palekana Sclerosis Multiple
• ʻO MS Society o Kanada
• Holo i loko o Treacle
• Nā Dinosaur, Hoki a me MS
• Yvonne deSousa
• ʻO kaʻu Odd Sock
• Kūhewa i nā pālahalaha
• Nānā MS a me Nūhou
• Hiki ʻia Rach
• Maikaʻi a ikaika hoʻi me MS
• ʻO ka MS Muse

ʻO ka sclerosis Multiple (MS) kahi maʻi kūpono ʻole me ka nui o nā ʻōuli e hiki ke hele, hele, hoʻolōʻihi, a i ʻole ke kaumaha.

No ka poʻe he nui, ka hoʻomaopopo ʻana i nā ʻoiaʻiʻo - {textend} mai ka hōʻoia ʻana a me nā koho lapaʻau ʻana i nā pilikia o ka noho ʻana me ka maʻi - ʻo {textend} ka hana mua i ke aʻo ʻana pehea e hoʻokele pono ai.

ʻO ka mea pōmaikaʻi, aia kahi kaiāulu kākoʻo ma laila e alakaʻi i ke ala ma ke kākoʻo ʻana, ka hoʻomaopopo ʻana, a me ka lilo ʻana i mea maoli e pili ana iā MS.

Ua hana kēia mau blog i kā mākou papa inoa ʻoi loa i kēia makahiki no kā lākou kuanaʻike kū hoʻokahi, kuko, a me ka hoʻokō e kōkua i ka poʻe e noho nei me MS.

MultipleSclerosis.net

Ka palekana o ka hoʻokele, ka pilikia kālā, ka loaʻa ʻana o ke kaumaha, ka pīhoihoi, a me ka makaʻu o ka wā e hiki mai ana - {textend} no nā mea he nui e noho nei me MS, he hopohopo hana kēia, a ʻaʻole hilahila kēia pūnaewele mai kekahi o lākou. ʻO ka leo mua a unvarnished kahi ʻāpana o ka mea e hana ai i ka ʻike ma ka blog MultipleSclerosis.net ikaika loa. ʻ telllelo nā mea kākau ʻōpio a me nā mea kākoʻo MS e like me Devin Garlit lāua ʻo Brooke Pelczynski e like me ia. Aia kekahi ʻāpana ma MS a me ke olakino noʻonoʻo, waiwai no kēlā me kēia mea e hakakā ana i nā hopena o ka maʻi a i ʻole ke kaumaha e hiki ke hele pū me nā maʻi maʻi.

Lawe ʻia kahi male ma MS

Ma ke kumu, he moʻolelo aloha kupaianaha kēia e pili ana i ʻelua mau kānaka e noho nei me MS. Akā ʻaʻole ia e kū ma laila. ʻO MS lāua ʻo Dan lāua ʻo Dan a mālama kekahi i kekahi. Ma kā lākou blog, kaʻana like lākou i nā kikoʻī o kā lākou mau hakakā a me nā kūleʻa o kēlā me kēia lā, me nā kumuwaiwai noʻonoʻo e kōkua ai i ka maʻalahi me MS. Mālama lākou iā ʻoe i kā lākou mau huakaʻi āpau, ka hana kākoʻo, a pehea lākou e mālama ai a mālama ai i kā lākou mau hihia pākahi o MS.

ʻO kaʻu mau maʻamau hou

ʻO ka poʻe me MS e ʻike nei i nā ʻōuli a i ʻole ka manawa paʻakikī e ʻike i nā ʻōlelo aʻo kōkua ma aneʻi. He kākoʻo ʻo Nicole Lemelle i ke kaiāulu MS no ka mea hiki i nā mea he nui o mākou ke hoʻomanaʻo, a ua loaʻa iā ia kahi wahi momona ma waena o ka haʻi ʻana i kāna moʻolelo me ka ʻoiaʻiʻo a me ka hoʻomau ʻana i ka hoʻoulu a hāpai i kāna kaiāulu. He huakaʻi pōhaku ʻo Nicole's MS huakaʻi i nā makahiki i hala iho nei, akā ua kaʻana like ʻo ia i kona koa i ke ala e makemake ai ʻoe e ʻapo iā ia ma o ka ʻoneki kamepiula.

Hoʻohui MS

ʻO ka poʻe me MS a me kā lākou poʻe mālama e ʻimi nei i ka hoʻoulu a i ʻole ka aʻo e loaʻa iā ia ma aneʻi. Hāʻawi kēia blog i nā ʻano moʻolelo like ʻole mai ka poʻe me MS i nā pae āpau o ko lākou ola. Kamaʻilio ʻo MS Connection e pili ana i nā mea āpau mai ka pilina a me ka hoʻoikaika kino i ka ʻōlelo aʻo a me nā mea āpau ma waena. Hoʻokipa ʻia e ka National MS Society, no laila ʻike ʻoe i nā ʻatikala noiʻi waiwai e kiola ʻia i aneʻi.

Kaikamahine me MS

E ʻike ka poʻe i ʻike hou ʻia me MS he kōkua nui kēia blog, ʻoiai ʻo ka mea e noho nei me MS hiki ke loaʻa ka waiwai i kēia mau ʻatikala. Ua hana ʻo Caroline Craven i kahi hana kupaianaha i ka hoʻokumu ʻana i kahi kumuwaiwai hiki ke hana ʻia no nā poʻe me MS e pili pū ana i nā kumuhana e like me nā aila kūpono, nā ʻōlelo hoʻopiha, a me ke olakino manaʻo.

Nā kamaʻilio MS

He mea kōkua kēia blog no ka poʻe i ʻike hou ʻia me MS, a i ʻole kekahi me kahi pilikia MS kikoʻī kahi e makemake ai lākou e ʻōlelo aʻo ʻia. Hoʻokipa ʻia e ka Multiple Sclerosis Association o ʻAmelika, kākau ʻia nā ʻatikala e ka poʻe me MS mai nā ʻano like ʻole o ke ola. ʻO kēia kahi hoʻomaka maikaʻi loa no ka poʻe e ʻimi nei i ke kiʻi piha o ke ola me MS.

Nā Nūhou Sclerosis Multiple i kēia lā

Inā ʻoe e ʻimi ana i kekahi mea i hiki ke noʻonoʻo ʻia he nūhou no ke kaiāulu MS, ʻo kēia kahi e loaʻa ai iā ʻoe. ʻO kēia wale nō ka paʻi pūnaewele e lawelawe nei i nā nūhou pili i ka MS i kēlā me kēia lā, ke hāʻawi nei i kahi kumuwaiwai paʻa a me ka manawa hou.

Palekana Sclerosis Multiple

E hauʻoli ka poʻe me MS e noho ana ma kahi ʻē i kēia ʻano ʻatikala e uhi nei i ka noiʻi MS. Aia kekahi mau moʻolelo pilikino o ka poʻe e noho nei me MS a me ka papa inoa o nā hanana pili i ka MS a me nā ʻohi kālā a puni ka United Kingdom.

ʻO MS Society o Kanada

Hoʻokumu ʻia ma waho o Toronto, hāʻawi kēia ʻoihana i nā lawelawe i ka poʻe e noho nei me MS a me ko lākou mau ʻohana, a me ka noiʻi kālā e loaʻa ai kahi lāʻau. Me ka lālā o 17,000 a ʻoi aku ka manaʻo, kākoʻo lākou i ke kākoʻo ʻana i nā noiʻi a me nā lawelawe MS ʻelua. Mākaʻikaʻi ma o nā kukui nānā noiʻi a me nā nūhou kālā, a komo i nā pūnaewele pūnaewele manuahi.

Holo i loko o Treacle

ʻO ka tagline ma kēia blog hōʻoluʻolu a maikaʻi hoʻi e "ʻōkupe i ke ola me MS." Hoʻonani ka hiʻohiʻona a me ka mana o Jen i nā ʻikepili āpau ma aneʻi - {textend} mai nā pou ma ka spoonie makua i nā ʻoiaʻiʻo o ka noho ʻana me ka "hewa maʻi mau" i nā loiloi huahana. Hana pū ʻo Jen ma Dizzycast, kahi podcast me Dinosaurs, Donkeys a me MS (e ʻike ma lalo).

Nā Dinosaur, Hoki a me MS

He mea hana keaka ʻo Heather he 27 makahiki a he kumu, a he kākoʻo hoʻi no MS e noho ana ma ʻEnelani. Ua ʻike ʻia ʻo ia me MS i mau makahiki i hala aku nei, a hoʻomaka ʻo ia i ka blog ʻana ma hope koke iho. Ma waho aʻe o ka kaʻana like ʻana i nā manaʻo a me nā kuanaʻike ma MS, ua kau ʻo ia i nā "mea ʻai, nā mea hoʻomaha, a me nā mea hoʻoikaika kino" e hōʻike he kōkua. Manaʻo paʻa i kahi nohona olakino e kōkua ana i ka hoʻomaikaʻi ʻana i ke ola me MS, kaʻana pinepine ʻo Heather i ka mea i hana maikaʻi loa nona.

Yvonne deSousa

ʻO Yvonne deSousa ʻo hoʻomākeʻaka. E nānā iā ia ʻaoʻao bio a ʻike ʻoe i ka manaʻo a mākou e ʻōlelo nei. Ua noho pū ʻo ia me relapsing remitting MS mai ka makahiki 40. ʻO kāna hopena i ka manawa i ʻike mua ʻia ai kona ʻike? "Paʻakikī e manaʻoʻiʻo akā ua hoʻomaka wau e ʻakaʻaka. A laila uē wau. Ua kāhea wau i koʻu kaikuahine ʻo Laurie i ʻike ʻia me MS he 10 mau makahiki ma mua. Hoʻakaʻaka ʻo ia iaʻu. Ua ʻike wau he leʻaleʻa ka ʻakaʻaka. A laila hoʻomaka wau e kākau. ” He mea kupaianaha ka hiki iā Yvonne ke loaʻa ka hoʻomākeʻaka ʻoiai ʻo kāna mau paʻakikī, akā kūlele loa ʻo ia inā pouli nā mea a paʻakikī paha e ʻakaʻaka. "He koʻikoʻi a weliweli ka Multiple Sclerosis," kākau ʻo ia. "ʻAʻole pili kēia mau palapala aʻu i kekahi ʻano e hoʻowahāwahā i kēia ʻano a i ʻole nā ​​mea e ʻeha ʻia ana, ʻo ia hoʻi nā mea i nā pae kiʻekiʻe. ʻO kaʻu palapala wale nō e hāʻawi i kahi minoʻaka pōkole i ka poʻe i hiki ke pili i kekahi o nā ʻano ʻano ʻē e kū mai ana mai MS. "

ʻO kaʻu Odd Sock

ʻO Doug o kaʻu Odd Sock ua manaʻo wale wau e pono ʻo ia i kahi ʻakaʻaka ma hope o kāna hōʻike o MS i ka makahiki 1996. A ʻakaʻaka ʻo ia. Me kāna blog, kono ʻo ia iā mākou āpau e ʻakaʻaka pū me ia. ʻO kā Mix Doug hui ʻino hoʻomākeʻaka a me ka hoʻowahāwahā ʻōlelo pilikino me ka hoʻopono kūpilikiʻi e pili ana i ka noho ʻana me MS e like me ka mālie o nā pou i waena o ka ʻino. I ka lilo ʻana i kāna ʻoihana ma ke ʻano he comedian a me kahi mea kākau kope hoʻolaha, ua ʻike ʻo Doug i nā mea i loko a me waho o "edu-taining." ʻImi ʻo ia e aʻo i kāna poʻe heluhelu e pili ana i nā ʻoiaʻiʻo o MS ʻoiai ke hilahila ia, e like me ka paʻakikī i ka mimi ʻana a i ʻole ka hele ʻana i kahi ʻōpū, a i ʻole ke kūkulu ʻia ʻana i kūkulu ʻole ʻia i ka wāwae o ka keʻena o ke kauka. Mālama ʻo ia iā mākou āpau e ʻakaʻaka pū.

Kūhewa i nā pālahalaha

ʻO Stumbling in Flats ka puke-huli-blog e ka luna o ka papahana-huli-ʻoihana-kākau-me-a-PhD Barbara A. Stensland.Ma muli o Cardiff, Wales, ua ʻike ʻia ʻo Barbara me MS i ka makahiki 2012 a ʻaʻole ia e hilahila i ka ʻae ʻana he mea hihia ʻo MS i kona ola. Ua hoʻokuʻu ʻia ʻo ia mai kahi hana no kāna MS, akā ʻaʻole ia i kāohi iā ia mai ka loaʻa ʻana o kahi MA ma ke kākau ʻana i ka hana, me ka lanakila ʻana i nā makana he nui no kāna kākau ʻana, he kākāʻōlelo no nā kiʻi ʻoniʻoni no nā hōʻike pono o MS, aia ma BBC a me BBC. Wales, a ke hāʻawi nei i nā pūnaewele no nā mea kūʻai aku like ʻole e like me nā ʻoihana lāʻau lapaʻau a me nā hui ʻo MS. ʻO kā Barbara leka e hiki ai iā ʻoe ke hana i kekahi mea, ʻoiai me kahi hōʻailona MS. Hoʻohana pū ʻo ia i kāna ʻike ponoʻī ma ke ʻano he mea kākau e kōkua i ka hoʻomaopopo ʻana i nā mea kākau blog ʻē aʻe e kākau e pili ana iā MS.

Nānā MS a me Nūhou

Mai hoʻokuʻu i ka template Blogspot maʻalahi e hoʻopunipuni iā ​​ʻoe. Ua waiwai ʻo MS Views a me News me ka ʻike e pili ana i nā holomua ʻepekema hou loa a me nā noiʻi e pili ana iā MS a me ka noiʻi hōʻoki loa e pili ana i nā mālama ʻana MS a me nā loulou i nā kumuwaiwai kōkua. Ua ʻike ʻia ʻo Stuart Schlossman i hoʻokumu ʻia ma Florida me MS i ka makahiki 1999 a hoʻokumu ʻo MS News a me Views e hāʻawi i kahi nui o ka ʻike ʻepekema a me nā ʻike olakino pili i ka MS āpau e waiho ʻia ma kahi hoʻokahi ma mua o ka hoʻopuehu ʻia ʻana ma ka Pūnaewele. ʻO kēia kahi hale kūʻai kū hoʻokahi e hoʻomaʻamaʻa i kou hoihoi e pili ana i nā mea e hana nei me ka noiʻi MS a kokoke loa i nā kumuwaiwai hiki ke hiki ʻole me ka ʻoniʻoni ʻana i nā kumuwaiwai he nui ma ka pūnaewele.

Hiki ʻia Rach

ʻO Rachael Tomlinson ka inoa o kāna pūnaewele ʻo Accessible Rach (tagline: "ʻoi aku ma mua o kahi noho huila"). He Yorkshire ʻo ia, ʻo ʻEnelani ka hoʻokumu pīpeku ma mua o ka poʻokela. A ma muli o kona ʻike ʻia me MS holomua mua, ua hoʻohuli ʻo ia i kona ola me MS i manawa kūpono e kamaʻilio ai e pili ana i ka hiki i ka noho huila (a i ʻole hemahema paha ia) o nā pāʻani līlū he nui a puni ka United Kingdom. Ua kōkua kāna hana i ka hoʻomaopopo ʻana i ka pilikia o ka hiki i ke kahua pāʻani haʻuki. He wahine Renaissance ʻo ia. Holo ʻo ia i kahi ʻaoʻao Instagram kaulana e paipai nei i nā ʻōlelo aʻoaʻo nani a me ka hoʻoneehie ʻoiai e kōkua ana i ka hoʻolaha ʻana i ka ʻike MS a me ka luku ʻana i ka stigma ma ka hoʻohana ʻana i kahi noho huila.

Maikaʻi a ikaika hoʻi me MS

Maikaʻi a ikaika me MS ka hana a SocialChow hoʻokumu a me CEO ʻo Angie Rose Randall. Ua hānau ʻia a hānai ʻia ʻo Angie ma Kikako a lilo i loea i ka kamaʻilio ma mua o kona ʻike ʻana i ka hoʻi hou ʻana o MS i 29 mau makahiki. ʻO kāna mikiona e hoʻokau i kāna ola hana i ka hōʻike e hōʻike i ka nui o ka hiki ke hiki ma hope o ka hōʻailona MS. A me nā hana manawa piha, e like me ka holo ʻana i kāna ʻoihana ponoʻī me nā mea kūʻai aku kiʻekiʻe e like me Sprint a me NASCAR, e hānai ana i ʻelua mau keiki ʻōpio a me kahi Shih Tzu, a ke kākau mau nei e pili ana i kāna mau ʻike, ua piha ʻo ia i kona mau lima. A ke hana nei ʻo ia i kahi hana maikaʻi maikaʻi loa ma ia.

ʻO ka MS Muse

ʻO kēia kahi blog pilikino pilikino i kākau ʻia e kahi wahine ʻeleʻele ʻōpio i loaʻa i kahi hōʻailona o ka sclerosis maha he 4 mau makahiki i hala. Ua hoʻoholo paʻa ʻo ia e makaʻu i kona ola me ka wiwo ʻole a ʻaʻole ʻo MS e wehewehe iā ia. Hōʻike ka blog i kāna moʻokāki kanaka mua o ka noho ʻana me MS. E ʻike ʻoe iā ia ʻo “ʻOihana Kūlohelohe” a me ka “The Journal” piha i nā moʻolelo pololei o kēlā me kēia lā me ka uhi kō ʻole. Inā makemake ʻoe e heluhelu i nā moʻolelo wiwo ʻole a hāmama o ke kīnā, hoʻi hou, a me ke kaumaha e hiki ke hele pū me MS, a hui pū ʻia me ko Ashley manaʻolana manaʻo maikaʻi, ʻo kēia ka blog na ʻoe.

Loaʻa kahi blog punahele āu e makemake ai e koho? Leka uila iā mākou ma [email protected].