ʻO ke alakaʻi maʻi maʻi holomua holomua: ke kiʻi ʻana i ke kākoʻo a me ka ʻimi ʻana i nā kumuwaiwai

Anter

• Kākoʻo Emotional a me ke kaiāulu
• Nā lawelawe olakino a me ka home
• Nā hoʻāʻo hoʻokolohua
• Kākoʻo kahu

Aia he tona o ka ʻike a me ke kākoʻo no ka poʻe me ka maʻi ʻaʻai umauma. Akā ma ke ʻano he kanaka e noho nei me ka maʻi ʻaʻai umauma metastatic, ʻokoʻa paha kāu mau pono mai ka poʻe i loaʻa i ka maʻi ʻaʻai umauma ma mua.

ʻO kāu kumuwaiwai ʻoi loa no ka ʻike olakino kāu hui oncology. Hiki iā lākou ke hāʻawi iā ʻoe i nā lako e pili ana i ka maʻi ʻaʻai umauma holomua. Loaʻa paha kou makemake i ka ʻike e pili ana i nā ʻano ʻē aʻe o ke ola me ka maʻi ʻaʻai umauma metastatic.

Hāʻawi kekahi mau hui i nā mea kōkua kikoʻī no ka poʻe me ka maʻi ʻaʻai umauma holomua. Eia kekahi mau wahi maikaʻi e hoʻomaka ai:

• ʻO ke kaiāulu cancer cancer holomua
• ʻAhahui Kanaka ʻAmelika
• BreastCancer.org
• Pūnaewele Kanaka Maʻi Metastatic

Kākoʻo Emotional a me ke kaiāulu

Ke noho nei me ka maʻi ʻaʻai umauma holomua, ʻaʻohe ou kanalua i ka nui o kou manaʻo. Me nā hoʻoholo hoʻoholo a pau, nā hoʻololi o ke kino, a me nā hopena ʻaoʻao, ʻaʻole ia he mea ʻokoʻa inā ʻoe e kaumaha i kekahi manawa.

ʻO nā mea āpau āu e manaʻo nei, ʻaʻole hewa lākou. ʻAʻole pono ʻoe e ola e like me nā mea a ka poʻe ʻē aʻe e manaʻo ai e pili ana i kou ʻano e noʻonoʻo ai a i ʻole ka mea āu e hana ai. Akā makemake paha ʻoe i kekahi e kamaʻilio pū.

ʻAʻohe paha kāu wahine, ʻohana, a mau hoaaloha paha i hiki ke hāʻawi i ke kākoʻo naʻau a me ke kaiaulu. ʻOiai inā ʻoe e hana, hiki iā ʻoe ke pōmaikaʻi mai ka hoʻopili ʻana me nā poʻe ʻē aʻe e noho pū nei me ka maʻi ʻaʻai metastatic. He hui kēia o nā poʻe e "loaʻa."

Inā ma ka pūnaewele a i ʻole ma ke kino, hāʻawi nā pūʻulu kākoʻo i kahi manawa kūikawā e kaʻana like i nā ʻike maʻamau. Hiki iā ʻoe ke kiʻi a hāʻawi i ke kākoʻo i ka manawa like. Hoʻokumu pinepine nā lālā o nā hui kākoʻo i nā paʻa paʻa o ka aloha.

Hiki iā ʻoe ke loaʻa nā pūʻulu kākoʻo i kou wahi ma o kāu keʻena oncologist, kahi haukapila kūloko, a hale hale hoʻomana paha.

Hiki iā ʻoe ke nānā i kēia mau kūkākūkā pūnaewele.

• ʻO Forum BreastCancer.org: ʻO ke kahua IV a me ka maʻi ʻaʻai Metastatic WALE
• ʻO ka hui kākoʻo maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi maʻi Metastatic Breast Cancer
• Pūʻulu Kākoʻo Mīkini Pahu (Advanced) Pūʻulu Kāko maʻi umauma (ma Facebook)
• ʻO Inspire.com Advanced Community Cancer Community
• ʻO ka TNBC (ka maʻi umauma ʻōpio ʻekolu) Metastasis / Papa Kūkākūkā hou

He kelepona wale aku kā nā limahana ʻoihana oncology. Loaʻa lākou e kōkua iā ʻoe e kūpale i nā pilikia a me nā pilikia kūpono o ka maʻi ʻaʻai.

Nā lawelawe olakino a me ka home

Kū mai nā nīnau he nui ke noho ʻoe me ka maʻi ʻaʻai holomua. ʻO wai ka mea e kōkua ke hiki ʻole iā ʻoe ke hoʻokele iā ʻoe iho i ka lāʻau? Ma hea e hiki ai iā ʻoe ke kūʻai i nā huahana olakino? Pehea ʻoe e ʻike ai i ke kōkua kōkua home āu e pono ai?

Loaʻa i kāu keʻena oncology i kēia mau nīnau i nā manawa āpau. Hiki iā lākou ke hāʻawi i kahi papa inoa o nā lawelawe a me nā mea hoʻolako i kāu wahi. Eia kekahi mau kumuwaiwai maikaʻi hou aʻe e hoʻāʻo:

• Hāʻawi ʻo ʻAmelika Hui Pū ʻIa ʻAmelika i ka ʻike e pili ana i nā lawelawe a me nā huahana like ʻole, e like me:
  • kumuwaiwai kālā
  • ka make lauoho, nā huahana mastectomy, a me nā huahana olakino ʻē aʻe
  • hoʻokele hoʻomanawanui kūloko
  • hale hoʻokipa ʻoiai ke loaʻa ʻana i ka lāʻau
  • holo i ka lapaʻau
  • ke kāohi ʻana i nā hopena e pili ana i ka helehelena
  • nā kaiāulu pūnaewele
• Hāʻawi ke Kōkua Kālā ʻo CancerCare i ke kōkua me:
  • nā kumukūʻai pili i ka mālama e like me ka halihali, mālama home, a me ka mālama keiki
  • kōkua kōkua copayment ʻinikua e uhi i ke kumukūʻai o ka chemotherapy a me nā lāʻau pahuhopu
• Hāʻawi ka hoʻomaʻemaʻe no kahi kumu i nā lawelawe mālama hale manuahi no nā wahine i ka mālama ʻana no ka maʻi ʻaʻai umauma, i loaʻa ma waena o ʻAmelika Hui Pū ʻIa a me Kanada

Inā ʻoe e ʻike he pono i ka mālama ʻana i ka home a i ʻole ka mālama hale hoʻokipa, eia kekahi mau ʻikepili ʻikepili e hiki ke kōkua iā ʻoe e ʻimi i kēia mau lawelawe.

• National Association for Home Care National Agency Kahua lawelawe
• ʻO ka National Hospice a me ka Palliative Care Organization - e ʻike i kahi hale maʻi

Hiki i ke kauka o kāu kauka ke kuhikuhi iā ʻoe i nā lawelawe i kou wahi. He manaʻo maikaʻi e noiʻi i kēia ma mua o ka pono ʻana, no laila ua mākaukau ʻoe.

Nā hoʻāʻo hoʻokolohua

ʻO nā hoʻokolohua hoʻokolohua kahi mea nui o ka noiʻi ʻana i ka maʻi ʻaʻai. Hāʻawi lākou iā ʻoe i kahi manawa kūpono e hoʻāʻo i nā hōʻailona hou i loaʻa ʻole iā ʻoe. ʻO kēia mau hoʻāʻo pinepine i nā pae hoʻohālikelike no ka hoʻopili ʻana.

Inā makemake ʻoe i ka hana ʻana i kahi hoʻokolohua hoʻokolohua, e hoʻomaka me ke kamaʻilio ʻana me kāu kauka. Hiki paha iā lākou ke ʻimi i kahi hoʻokolokolo e kūpono i kou kūlana. Hiki iā ʻoe ke nānā i kēia mau ʻikepili pūnaewele hiki ke huli ʻia:

• ʻO ClinicalTrials.gov
• Huli o ka hoʻāʻo ʻana o ka Alliance Cancer Metastatic Breast Cancer
• ʻO ka mea huli i nā maʻi maʻi maʻi Metastatic Breast Cancer Network

Kākoʻo kahu

Hiki i nā mea mālama maʻi mua ke lilo i mea kaumaha loa. I ke kaʻina o ka mālama ʻana i kahi mea aloha, haʻalele pinepine lākou i ko lākou pono iho. Paipai iā lākou e noi i ke kōkua.

Eia kekahi mau ala e kōkua ai e hoʻomāmā i ka ukana.

• Pūnaewele Hana Mālama: ʻike a me nā pono hana e hoʻonohonoho pono ai
• ʻO Caring.com - Ke lilo i kahu kākoʻo Group: ʻōlelo aʻoaʻo a me nā ʻōlelo aʻo e pili ana i ka mālama ʻana i ka mea mālama
• ʻĀina mālama ʻohana: ka ʻike, ka ʻōlelo aʻoaʻo, a me ke kākoʻo kahu
• Nā Lima Kōkua Lotsa: nā mea hana e "Hana i kahi kaiāulu mālama" e hoʻonohonoho i ke kōkua me nā kuleana mālama e like me ka hoʻomākaukau mua

Ma waho o kā lākou hana mālama, hiki i kēia poʻe ke lawe i ke kuleana o ka mālama ʻana i nā mea āpau i ka loop. Akā he nui wale nā ​​hola i ka lā.

Ma laila e komo ai nā hui e like me CaringBridge a me CarePages. ʻAe lākou iā ʻoe e hana wikiwiki i kāu ʻaoʻao pūnaewele ponoʻī. A laila hiki iā ʻoe ke hoʻomaikaʻi maʻalahi i nā hoaaloha a me ka ʻohana me ka ʻole o ka hana hou ʻana iā ʻoe iho a i ʻole ka nui o nā kelepona ʻana. Hiki iā ʻoe ke kāohi i ka mea i loaʻa i kāu mea hou, a hiki i nā lālā ke hoʻohui i nā manaʻo o kā lākou iho i hiki iā ʻoe ke heluhelu i kāu wā leʻaleʻa.

Loaʻa i kēia mau pūnaewele i nā pono hana e hana i kahi papahana kōkua. Hiki i nā mea manawaleʻa ke kau inoa e hana i nā hana kikoʻī i kekahi lā a me ka manawa i hiki ai iā ʻoe ke hoʻolālā i ka hoʻomaha.

He maʻalahi ke nalowale i ka mālama. Akā hana ka poʻe mālama i kahi ʻoihana ʻoi aku ka maikaʻi ke mālama lākou iā lākou iho.