Kahului

ʻO Arachnodactyly kahi kūlana i lōʻihi ai nā manamana lima, lohi, a wili. Ua like lākou me nā wāwae o ka nananana (arachnid).

Hiki i nā manamana lima loloa a lahilahi ke maʻamau a pili ʻole i nā pilikia olakino. I kekahi mau hihia naʻe, hiki i "nā manamana spider" ke hōʻailona o kahi maʻi maʻi.

Nā kumu e komo pū paha:

• Homocystinuria
• Maʻi ʻo Marfan
• Nā maʻi kūlohelohe ʻē aʻe

Kaha: ʻo ka lōʻihi o nā manamana lima lohi a maʻamau paha.

Hānau ʻia kekahi mau keiki me ka arachnodactyly. E ʻikea hou aʻe paha i ka hala ʻana o ka manawa. E kamaʻilio me kāu mea mālama ola inā lōʻihi kou mau manamana lima lōʻihi a wīwī a hopohopo ʻoe e noho ana kahi ʻano kumu paʻa.

E hana ka mea hāʻawi i kahi hoʻokolohua kino. E nīnau ʻia ʻoe e pili ana i ka mōʻaukala. Pākuʻi ʻia kēia:

• I ka manawa hea ʻoe i ʻike ai i ke ʻano o nā manamana lima e like me kēia?
• Aia kekahi moʻolelo ʻohana o ka make mua? Aia kekahi moʻolelo ʻohana o nā maʻi hoʻoilina i ʻike ʻia?
• He aha nā hōʻailona ʻē aʻe e kū nei? Ua ʻike anei ʻoe i kekahi mau mea ʻē aʻe?

ʻAʻole pono pinepine nā hōʻoia diagnostics ke ʻole e manaʻo ʻia he maʻi hoʻoilina.

Dolichostenomelia; Nā manamana spider; Achromachia

ʻO Doyle Al, Doyle JJ, Dietz HC. Maʻi ʻo Marfan. I: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, eds. ʻO Puka Textbook of Pediatrics ʻo Nelson. 21st ed. Piladelapia, PA: Elsevier; 2020: chap 722.

ʻO Herring JA. Nā syndrome e pili ana i ka Orthopedic. I: Herring JA, hoʻoponopono. ʻO Tachdjian's Pediatric Orthopedics. 5th lā. Piladelapia, PA: Elsevier Saunders; 2014: chap 41.