Myalgic encephalomyelitis / maʻi luhi paʻa (ME / CFS)

ʻO Myalgic encephalomyelitis / maʻi paupau mau loa (ME / CFS) kahi maʻi lōʻihi e pili ana i nā ʻōnaehana o ke kino. ʻAʻole hiki i ka poʻe me kēia maʻi ke hana i kā lākou hana maʻamau. I kekahi manawa, hoʻopaʻa ʻia lākou i ka moe. Hiki ke kāhea ʻia ke ʻano i ka maʻi intolerance ʻōnaehana exictional (SEID).

ʻO kahi hōʻailona maʻamau ka luhi nui. ʻAʻole maikaʻi ʻo ia me ka hoʻomaha a ʻaʻole kumu kūpono ʻia e nā pilikia olakino ʻē aʻe. Hiki i nā ʻōuli ʻē aʻe ke hoʻopili i nā pilikia me ka noʻonoʻo a me ka noʻonoʻo ʻana, ka ʻeha, a me ka puʻupuʻu.

ʻAʻole ʻike ʻia ke kumu kūpono o ME / CFS. Loaʻa paha ma mua o hoʻokahi kumu. ʻO kahi laʻana, ʻelua a ʻoi paha nā kumu kūpono e hana pū paha e hoʻomaka i ka maʻi.

Ke nānā nei nā mea noiʻi i kēia mau kumu kūpono.

• Maʻi kīnā - Ma kahi o 1 o 10 mau kānaka e hoʻomohala i kekahi mau maʻi, e like me Epstein-Barr virus a me Q fever, e hoʻomau i ka hoʻomohala ʻana iā ME / CFS. Ua aʻo ʻia kekahi mau maʻi ʻē aʻe, akā ʻaʻohe kumu i loaʻa.
• Hoʻololi ka ʻōnaehana pale maʻi - Hoʻohua ʻia ʻo ME / CFS e nā loli i ke ʻano o ka pale ʻana o ke kino o ke kanaka i ka hoʻoluhi a maʻi paha.
• Kaumaha noʻonoʻo a kino paha - Nui nā poʻe me ME / CFS i loaʻa i ke koʻikoʻi koʻikoʻi a i ʻole ke kino ma mua o ka maʻi ʻana.
• Iecaianoaaiiuo ikehu -ʻO ke ala e loaʻa ai ka ikehu o nā hunaola i ka poʻe me ME / CFS ma mua o ka poʻe me ke ʻano ʻole. ʻAʻole maopopo i ka pili ʻana o kēia i ka hoʻomohala ʻana i ka maʻi.

Hiki paha i nā genetics a i ʻole nā ​​hopena o ke kaiapuni ke hana i ka hoʻomohala ʻana o ME / CFS:

• Hiki i kekahi ke kiʻi iā ME / CFS.
• ʻOiai ʻo ka mea maʻamau i nā poʻe ma waena o 40 a 60 mau makahiki, pili ka maʻi i nā keiki, ʻōpio, a me nā mākua o nā makahiki āpau.
• Ma waena o nā mākua, pili pinepine nā wahine ma mua o nā kāne.
• ʻIke ʻia ka poʻe keʻokeʻo ma mua o nā lāhui a me nā lāhui ʻē aʻe. Akā ʻaʻole nui ka poʻe me ME / CFS i ʻike ʻia, ma waena o nā mea liʻiliʻi.

ʻEkolu mau hōʻailona nui, a i ʻole "kumu," i ka poʻe me ME / CFS:

• Luhi hohonu
• Hoʻonui i nā ʻōuli ma hope o ka hoʻoikaika kino a me ka noʻonoʻo paha
• Pilikia hiamoe

ʻO ka poʻe me ME / CFS ka luhi hoʻomau a hohonu hoʻi a hiki ʻole ke hana i nā hana i hiki iā lākou ke hana ma mua o ka maʻi. ʻO kēia luhi nui loa:

• Hou
• Lōʻihi ma ka liʻiliʻi 6 mahina
• ʻAʻole ma muli o kahi hana maʻamau a ikaika paha
• ʻAʻole hoʻomaha ʻia e ka hiamoe a hoʻomaha hoʻomaha paha
• Lawa nui e mālama iā ʻoe mai ke komo ʻana i kekahi mau hana

Hiki i nā hōʻailona ME / CFS ke lilo i mea ʻoi aku ka maikaʻi ma hope o ka hana kino a noʻonoʻo paha. Kāhea ʻia kēia ʻo malaise post-exertional (PEM), i ʻike ʻia hoʻi me ke kuʻi, hoʻi hou, a hāʻule paha.

• ʻO kahi laʻana, ʻike paha ʻoe i kahi hāʻule ma hope o ke kūʻai ʻana ma ka hale kūʻai a pono e hiamoe ma mua o ka holo ʻana i ka home. A i ʻole pono ʻoe i kekahi e kiʻi mai iā ʻoe.
• ʻAʻohe ala e wānana i ka mea e hopena ai i ka hāʻule a ʻike paha i ka lōʻihi e ola ai. Hiki iā ia ke hala i mau lā, mau pule, a ʻoi aku paha ka lōʻihi o ke ola hou ʻana.

Hiki paha i nā pilikia hiamoe ke komo i nā pilikia e hiamoe ana a hiamoe paha. ʻAʻole hoʻomaha kahi hoʻomaha o ka pō holoʻokoʻa i ka luhi a me nā hōʻailona ʻē aʻe.

ʻIke pinepine ka poʻe me ME / CFS ma ka liʻiliʻi i hoʻokahi o nā hōʻailona ʻelua:

• Poina, pilikia noʻonoʻo, nā pilikia e pili ana i nā kikoʻī (i kapa ʻia ʻo "fog lolo")
• Nā hōʻailona hōʻino ke kū a kū pololei paha. Kāhea ʻia kēia mea he intolerance orthostatic. Pīhoihoi paha ʻoe, ʻālohilohi, a maʻule paha ke kū ʻana a noho paha i luna. Hiki paha iā ʻoe ke hoʻololi i ka hihi a ʻike paha i nā kiko.

ʻO nā ʻōuli maʻamau e pili pū me:

• ʻO ka ʻeha pū me ka ʻole o ka pehu a me ka ʻulaʻula, ʻeha nā mākala, nāwaliwali nā mākala āpau, a i ʻole nā ​​ʻeha poʻo ʻokoʻa i nā mea āu i loaʻa i ka wā ma mua
• ʻO ka puʻu ʻeha, ʻeha lymph node ʻeha ma ka ʻāʻī a i ʻole ma lalo o nā lima, haʻalulu a me ka sweats o ka pō
• ʻO nā pilikia Digestive, e like me ka maʻi hanu huhū
• Nā Pāhoihoi
• ʻIke i ka walaʻau, ka meaʻai, nā pilau, a i ʻole nā ​​kemika

Hōʻike nā kikowaena no ka maʻi maʻi (CDC) ME / CFS ma ke ʻano he ʻano maʻi ʻokoʻa me nā ʻōuli kikoʻī a me nā hōʻailona kino. Hoʻokumu ʻia ka diagnostics ma ke kāpae ʻana i nā kumu kūpono ʻē aʻe.

E hoʻāʻo kāu kauka olakino e kāpae i nā kumu ʻē aʻe o ka luhi, e like me:

• Kaukaʻi ʻaʻano
• Nā maʻi Immune a autoimmune paha
• Nā maʻi ʻino
• Nā maʻi Muscle a nerve paha (e like me nā sclerosis he nui)
• Nā maʻi Endocrine (e like me hypothyroidism)
• Nā maʻi ʻē aʻe (e like me ka puʻuwai, nā puʻuwai, a me nā maʻi ate)
• Nā maʻi psychiatric a i ʻole psychological, ʻoiai kaumaha
• Nā Tumors

Pono e hoʻopili ʻia kahi hōʻailona o ME / CFS:

• Ka loaʻa ʻole o nā kumu ʻē aʻe o ka luhi wā lōʻihi (mau)
• Ma ka liʻiliʻi ʻehā mau hōʻailona ME / CFS-kikoʻī
• Ka luhi nui, luhi lōʻihi

ʻAʻohe mau hoʻokolohua kikoʻī e hōʻoia i ka ʻike o ME / CFS. Eia nō naʻe, aia kekahi mau hōʻike o ka poʻe me ME / CFS me nā hopena maikaʻi ʻole ma nā hōʻike aʻe:

• Koʻo MRI
• Helu keʻokeʻo koko keʻokeʻo

ʻAʻohe mea ola i kēia manawa no ME / CFS. ʻO ka pahuhopu o ka mālama ʻana e hōʻoluʻolu i nā ʻōuli.

Hoʻopili ka mālama ʻana i kahi hui o kēia mau mea:

• Nā ʻenehana hoʻokele hiamoe
• ʻO nā lāʻau e hōʻemi i ka ʻeha, hōʻoluʻolu, a me ke kuni
• Nā lāʻau lapaʻau e mālama i ka hopohopo (anti-hopohopo lāʻau)
• Nā lāʻau lapaʻau e mālama i ke kaumaha (antidepressant lāʻau)
• Papaʻai olakino

Hiki i kekahi mau lāʻau ke hana i nā hopena a i ʻole nā ​​hopena ʻino i ʻoi aku ka maikaʻi ma mua o nā ʻōuli kumu o ka maʻi.

Paipai ʻia ka poʻe me ME / CFS e mālama i kahi ola kaiaulu. Kōkua paha ka hoʻoikaika kino hoʻoikaika kino. E kōkua kāu hui mālama ola iā ʻoe e noʻonoʻo pehea ka nui o ka hana e hiki ai iā ʻoe ke hana, a pehea e hoʻonui mālie ai i kāu hana. Pākuʻi ʻia nā ʻōlelo aʻoaʻo:

• Hōʻalo i ka hana nui ʻana i nā lā ke luhi ʻoe
• E kaulike i kou manawa ma waena o ka hana, ka hoʻomaha, a me ka hiamoe
• E uhaʻi i nā hana nui i mau mea liʻiliʻi, ʻoi aku ka hiki ke hoʻomalu ʻia
• E hoʻolaha i kāu mau hana ʻoi aku ka paʻakikī i loko o ka pule

Hiki i ka hoʻomaha a me nā hana hoʻohaʻahaʻa hoʻohaʻahaʻa ke kōkua i ka mālama ʻana i ka ʻeha mau (lōʻihi) a me ka luhi. ʻAʻole hoʻohana ʻia ia ma ke ʻano he lapaʻau mua no ME / CFS. Hoʻokomo ʻia nā ʻano hana hoʻomaha:

• ʻO Biofeedback
• Hoʻoikaika hanu hohonu
• Hypnosis
• Laʻau lomilomi
• Noʻonoʻo
• Nā hana hoʻomaha hoʻomaha Muscle
• Yoga

He mea kōkua nō paha ka hana pū ʻana me kahi mea hoʻoponopono e kōkua iā ʻoe e hana me kou mau manaʻo a me ka hopena o ka maʻi i kou ola.

Ke noiʻi ʻia nei nā ala lāʻau hou.

Pōmaikaʻi paha kekahi poʻe i ka lawe ʻana i kahi hui kākoʻo ME / CFS.

ʻOkoʻa ka nānā lōʻihi no ka poʻe me ME / CFS. He paʻakikī e wānana ke hoʻomaka mua nā ʻōuli. E ola loa kekahi poʻe ma hope o 6 mau mahina a hoʻokahi makahiki.

Ma kahi o 1 i ka 4 mau kānaka me ME / CFS he kīnā loa i hiki ʻole iā lākou ke hele i waho o kahi moe a haʻalele i ko lākou home. Hiki i nā ʻōuli ke hele mai a hele i ke kaʻa pōʻai, a ʻoiai ke maikaʻi ka poʻe, ʻike paha lākou i kahi hoʻi hou e hoʻoulu ʻia e ka hana a i ʻole kahi kumu ʻike ʻole ʻia.

ʻAʻole manaʻo kekahi poʻe e like me lākou ma mua o ka hoʻomohala ʻana iā ME / CFS. Hōʻike nā haʻawina e ʻoi aku paha kou maikaʻi inā loaʻa iā ʻoe ka hoʻoponopono hou.

Komo pū nā pilikia:

• Kaumaha
• ʻAʻole hiki ke komo i ka hana a me nā hana kaiaulu, kahi e alakaʻi ai i kahi kaʻawale
• Nā hopena ʻaoʻao mai nā lāʻau a i ʻole nā ​​lāʻau lapaʻau

Kāhea i kāu mea hāʻawi inā loaʻa ʻoe i ka luhi nui, me ka ʻole o nā ʻōuli ʻē aʻe o kēia maʻi. Hiki i nā maʻi ʻino ʻē aʻe ke kumu i nā ʻōuli like a pono e hoʻokau ʻia.

CFS; Māluhiluhi - maʻi mau; Maʻi pale maʻi Immune; Myalgic encephalomyelitis (ME); Myalgic encephalopathy maʻi luhi maʻi (ME-CFS); ʻO ka maʻi intolerance ʻōnaehana ʻōnaehana (SEID)

Nā kikowaena no ka pūnaewele Disease Control a me Prevent. Myalgic encephalomyelitis / maʻi luhi paʻa: lapaʻau. www.cdc.gov/me-cfs/treatment/index.html. Hoʻohou Nowemapa 19, 2019. Loaʻa iā Iulai 17, 2020.

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