Ka hana ʻana me ka maʻi ʻaʻai maʻi mau

I kekahi manawa ʻaʻole hiki ke mālama pono ʻia ka maʻi ʻaʻai. ʻO ke kumu, ʻaʻohe ala e hoʻopau loa ai i ka maʻi ʻaʻai, akā ʻaʻole holo holomua ka maʻi ʻaʻai. Hiki ke hoʻokuʻu ʻia i kekahi mau maʻi ʻōpala akā hoʻi mai a mālama hou ʻia me ka maikaʻi.

Hiki paha ke kaohi i ka maʻi ʻaʻai no nā mahina a mau makahiki paha. Pono ka hana ʻana pēlā i ka mālama mau ʻana e kōkua i ka mālama ʻana i ka maʻi ʻaʻai no ka mea hiki ke hiki. No laila, lilo ia i mea like me ka maʻi maʻi mau.

ʻO kekahi ʻano o ka maʻi ʻaʻai a i ʻole lilo i mau wā mau a ʻaʻole loa e hele.

• Leukemia maʻi
• ʻO kekahi ʻano lymphoma
• Maʻi ʻaʻai Ovarian
• Maʻi ʻaʻai umauma

ʻO ka pinepine, ua pālahalaha kēia mau maʻi ʻaʻai i nā ʻāpana ʻē aʻe o ke kino (metastasized). ʻAʻole hiki iā lākou ke hoʻōla, akā hiki ke kāohi pinepine ʻia no kekahi manawa.

Ke loaʻa ʻoe i ka maʻi ʻaʻai maʻi maʻi, ʻo ka mea nui ka mālama ʻana iā ia ma lalo o ka kaohi, ʻaʻole e hoʻōla i ka maʻi ʻaʻai. ʻO kēia ka mālama ʻana i ka tumo mai ka nui a i ʻole ka hoʻolaha ʻana i nā wahi ʻē aʻe. Hiki ke kōkua i ka mālama ʻana no ka maʻi ʻaʻai maʻi mau i ka mālama ʻana i nā ʻōuli.

Ke ulu ʻole nei ka maʻi ʻaʻai, ua kapa ʻia ia ma ke kala ʻana a i ʻole he maʻi paʻa. E kiaʻi pono kāu mea mālama ola i ka maʻi ʻaʻai e nānā i kahi ulu. Pono ʻoe i ka mālama mau e kōkua i ka mālama ʻana i ka maʻi ʻaʻai. Kapa ʻia kēia mālama mālama.

Inā hoʻomaka kou kanesa e ulu a laha paha, pono ʻoe i kahi lāʻau ʻokoʻa e hoʻāʻo e hoʻoliʻiliʻi a kū i ka ulu ʻana paha. Hiki paha i kāu maʻi ʻaʻai ke hele ma waena o nā ʻōpuni o ka ulu ʻana a emi ʻana. A i ʻole ulu paha kou kanesa i nā makahiki he nui.

Ma muli o ka ʻokoʻa o kēlā me kēia kanaka a me kēlā me kēia maʻi ʻaʻai, ʻaʻole hiki i kāu mea hāʻawi ke haʻi pololei iā ʻoe i ka lōʻihi o ka kaohi ʻia ʻana o kāu maʻi ʻaʻai.

Chemotherapy (chemo) a i ʻole immunotherapy hiki ke hoʻohana ʻia no nā maʻi maʻi maʻi mau. Nui a hewahewa nā ʻano lāʻau e koho ai. Inā ʻaʻole holo kekahi ʻano, a oki paha i ka hana, manaʻo paha kāu mea hāʻawi e hoʻohana i kekahi.

I kekahi manawa, hiki i ke kanesa ke kūʻē i nā lāʻau āpau i ʻae ʻia e mālama iā ia. Inā kū kēia, e kamaʻilio me kāu mea hāʻawi e pili ana i kāu koho. E makemake paha ʻoe e hoʻāʻo i kahi lāʻau ʻē aʻe, hui i kahi hoʻokolohua hoʻokolohua, a i ʻole hoʻoholo paha ʻoe e hōʻoki i ka lāʻau.

ʻO kēlā me kēia lāʻau lapaʻau āu e loaʻa ai, he mea nui ia e hāhai i nā ʻōlelo aʻoaʻo a kāu mea hoʻolako no ka lawe ʻana i ka lāʻau. Loaʻa i kāu mau kauka kauka e like me ka mea i hoʻonohonoho ʻia. Inā loaʻa iā ʻoe nā hopena ʻaoʻao, e haʻi i kāu mea hāʻawi. Aia kekahi mau ala e hōʻemi ai i nā hopena ʻaoʻao. Mai hōʻoki i ka lawe ʻana i kekahi lāʻau i ke kamaʻilio mua ʻole ʻia me kāu mea hāʻawi.

ʻAʻohe palena o ka lōʻihi o kāu hiki ke hoʻomau i ka mālama ʻana no ka maʻi ʻaʻai maʻi mau. He hoʻoholo pilikino ia e pono ai ʻoe e hana me ke kōkua o kāu mea lawelawe a me nā mea aloha. Pili paha kāu hoʻoholo i:

• Ke ʻano o ka maʻi ʻaʻai āu
• Kou makahiki
• ʻO kou olakino holoʻokoʻa
• Pehea kou manaʻo ma hope o ka mālama ʻana
• Pehea ka maikaʻi o ka mālama ʻana e kāohi ai i kou maʻi ʻaʻai
• Nā hopena ʻē aʻe i loaʻa iā ʻoe me ka lāʻau

Inā hoʻoholo ʻoe e hōʻoki i ka lāʻau e hana ʻole nei, hiki iā ʻoe ke mālama i ka mālama palliative a i ʻole ka mālama hale hānai e mālama i nā hōʻailona o kou maʻi maʻi. ʻAʻole kōkua kēia i ka mālama ʻana i ka maʻi ʻaʻai, akā hiki iā ia ke kōkua iā ʻoe e noʻonoʻo i kou maikaʻi loa no ka manawa āu i haʻalele ai.

ʻAʻole maʻalahi ka noho ʻana me kahi maʻi ʻaʻai āu e ʻike nei ʻaʻole e hele. E kaumaha paha ʻoe, huhū a makaʻu paha. Kōkua paha kēia mau manaʻo iā ʻoe e kū:

• Hana i nā mea āu e hauʻoli ai. Pākuʻi paha kēia i ka ʻike i ke mele a i ʻole keaka, huakaʻi, a lawaiʻa paha. ʻO kēlā me kēia mea, e hoʻolālā manawa e hana ai.
• Nanea i kēia manawa. E hoʻāʻo e nānā i ka leʻaleʻa i kēia manawa ma kahi o ka hopohopo no ka wā e hiki mai ana. E kia i nā mea liʻiliʻi e lawe iā ʻoe i ka hauʻoli i kēlā me kēia lā, e like me ka hoʻolilo manawa ʻana me ka ʻohana, ka heluhelu ʻana i kahi puke maikaʻi, a me ka hele wāwae ʻana i ka ulu lāʻau.
• Kaʻana i kou mau manaʻo. ʻO ke kaʻana ʻana i kou mau manaʻo me nā poʻe ʻē aʻe e kōkua ai iā ʻoe e hōʻoluʻolu. Hiki iā ʻoe ke kamaʻilio me kahi lālā o ka ʻohana pili a i ʻole hoaaloha paha, e hui pū me kahi hui kākoʻo, a i ʻole e launa pū me ke kākāʻōlelo a i ʻole lālā o nā kāhuna pule.
• E hoʻokuʻu i ka hopohopo. He maʻamau ka manaʻo hopohopo, akā e hoʻāʻo e ʻaʻole e waiho i kēia mau manaʻo i luna. E hoʻomaopopo i kēia mau makaʻu a laila hoʻomaʻamaʻa e hoʻokuʻu iā lākou.

Pūnaewele ʻAmelika Hui Pū ʻIa ʻAmelika. Ka mālama ʻana i ka maʻi ʻaʻai me he maʻi maʻi mau lā. www.cancer.org/treatment/survivorship-during-and- After-treatment/when-cancer-doesnt-go-away.html. Hoʻohou i Ianuali 14, 2019. Loaʻa iā ʻApelila 8, 2020.

Pūnaewele ASCO Cancer.net. Ke kāohi nei i ka maʻi ʻaʻai metastatic. www.cancer.net/coping-with-cancer/managing-emotions/coping-with-metastatic-cancer. Hoʻohou ʻia Malaki Malaki 2019. Loaʻa iā ʻApelila 8, 2020.

Pūnaewele ʻo National Cancer Institute. Ke hoʻi mai ka maʻi ʻaʻai. www.cancer.gov/publications/patient-education/when-cancer-returns.pdf. Hoʻohou i Pepeluali 2019. Loaʻa iā ʻApelila 8, 2020.

Byrd JC. Leukemia lymphocytic mau. I: Goldman L, Schafer AI, eds. ʻO ka lāʻau lapaʻau Goldman-Cecil. 26th ed. Piladelapia, PA: Elsevier; 2020: chap 174.

• Kanesa - Noho me ka maʻi ʻaʻai