15 Kumuwaiwai no nā Māmā me ka maʻi ʻaʻai Metastatic umauma

Anter

• 1. Nā lawelawe hoʻomaʻemaʻe
• 2. Hoʻomākaukau a me ka lawe ʻana i ka meaʻai
• 3. Hoʻomoana no kāu poʻe keiki
• 4. Hoʻolālā manuahi
• 5. Nā lawelawe halihali
• 6. Huli hoʻāʻo hoʻokolohua
• 7. Holo i kou mau hoaaloha me Lotsa Helping Hands
• 8. Nā limahana kaiaulu
• 9. Nā polokalamu kōkua kālā
• 10. Nā puke
• 11. Blogs
• 12. Nā hui kākoʻo
• 13. Kumu aʻoaʻo hoʻokahi
• 14. Pūnaewele aʻo hilinaʻi ʻia
• 15. Inā hāpai ʻoe
• Lawe aku

Hoʻopili mākou i nā huahana a mākou e manaʻo nei he pono no kā mākou poʻe heluhelu. Inā kūʻai ʻoe ma o nā loulou i kēia ʻaoʻao, loaʻa iā mākou kahi kōmike liʻiliʻi. Eia kā mākou hana.

Inā he makuahine ʻōpio ʻoe i ʻike ʻia me ka maʻi ʻaʻai umauma metastatic (MBC), ke hoʻokele nei i kou kūlana a me ka mālama ʻana i kāu mau keiki i ka manawa like he mea weliweli paha. Hoʻololi i nā kuleana o nā mākua ʻoiai e mālama ana i nā wā a ke kauka, noho lōʻihi i ka haukapila, kahi wai o nā manaʻo hou, a me nā hopena ʻaoʻao o kāu mau lāʻau e like paha me ka hiki ʻole ke mālama.

ʻO ka mea pōmaikaʻi, nui nā kumuwaiwai hiki iā ʻoe ke huli no nā ʻōlelo aʻoaʻo a me ke kākoʻo. Mai makaʻu e noi i ke kōkua. Eia kekahi o nā kumuwaiwai he nui i loaʻa iā ʻoe.

1. Nā lawelawe hoʻomaʻemaʻe

ʻO ka hoʻomaʻemaʻe no kahi kumu kahi hui nonprofit e hāʻawi nei i ka hoʻomaʻemaʻe hale manuahi no nā wahine e hana ana i ka mālama no kēlā me kēia ʻano maʻi ʻaʻai ma ʻAmelika Hema. E hoʻokomo i kāu ʻikepili ma kā lākou pūnaewele e kūlike me kahi ʻoihana hoʻomaʻemaʻe kokoke iā ʻoe.

2. Hoʻomākaukau a me ka lawe ʻana i ka meaʻai

ʻO ka lawelawe ʻana iā Wakinekona, D.C., kahi, Food & Friends kahi mea kōkua ʻole e hāʻawi i nā meaʻai, nā meaʻai, a me nā ʻōlelo aʻoaʻo pono i ka poʻe e noho nei me ka maʻi ʻaʻai a me nā maʻi maʻi ʻē aʻe. ʻAʻohe manuahi nā pāʻina āpau, akā pono ʻoe e hāʻawi ʻia e ka mea mālama ola i hiki ke koho ʻia.

ʻO Magnolia Meals ma ka Home kahi hui ʻē aʻe e hāʻawi i nā meaʻai i nā mea momona no nā poʻe me ka maʻi ʻaʻai a me ko lākou mau ʻohana. Loaʻa ʻo Magnolia i kēia manawa ma nā ʻāpana o New Jersey, Massachusetts, New Hampshire, North Carolina, Connecticut, a me New York. E loaʻa ʻoe i nā meaʻai i hoʻomākaukau e hālāwai me kāu mau pono ponoola no ʻoe iho a me kou ʻohana, ke noi ʻia.

Inā noho ʻoe ma kahi ʻē, e nīnau i kāu kauka a i ʻole mea lawelawe olakino no ka ʻike e pili ana i ka hoʻomākaukau ʻana o ka meaʻai a me ka lawe ʻana i kāu wahi.

3. Hoʻomoana no kāu poʻe keiki

Hiki i nā kahua hoʻomoana kauwela ke ala maikaʻi loa no nā keiki e hoʻonāwaliwali ai, loaʻa ke kākoʻo, a hele i kahi leʻaleʻa leʻaleʻa.

Hāʻawi ʻo Camp Kesem i nā kahua kauwela manuahi no nā keiki me ka makua i loaʻa a i ʻole ka maʻi ʻaʻai. Mālama ʻia nā wahi hoʻomoana ma nā pā kula o nā kula nui ma ʻAmelika Hui Pū ʻIa.

4. Hoʻolālā manuahi

Hiki ke lōʻihi loa ka mālama ʻana i ka maʻi ʻaʻai mai ka hoʻomaha ʻana. Hāʻawi ka Pūnaewele Kākoʻo ʻAmelika Hui Pū ʻIa nonprofit iā "Wale 4 U" Kākoʻo kākoʻo e hoʻopili ana i nā makana pilikino i hoʻohana ʻia e hoʻohana ai i ka wā o ka maʻi maʻi maʻi.

ʻO Look Good Feel Better kahi hui ʻē aʻe e hiki ke aʻo iā ʻoe i nā ʻano nani ma loko o ka mālama ʻana i ka maʻi ʻaʻai, e like me nā mea hoʻonaninani, mālama ʻili, a me kaila.

5. Nā lawelawe halihali

Hiki i ka American Cancer Society ke hāʻawi iā ʻoe i kahi holo manuahi i kāu lapaʻau ʻana. Kāhea wale i kā lākou helu helu ʻole e ʻike i kahi kaʻa e kokoke ana iā ʻoe: 800-227-2345.

Pono e lele i kahi no kāu lapaʻau? Hāʻawi ʻo Air Charity Network i ka huakaʻi mokulele manuahi no nā mea maʻi me nā pono olakino a me nā pono kālā.

6. Huli hoʻāʻo hoʻokolohua

Hana maʻalahi ʻo Breastcancertrials.org i ka hoʻāʻo ʻana i kahi hoʻokolohua hoʻokolohua maʻalahi. Ma ke ʻano he māmā hana, ʻaʻohe ou manawa a ahonui paha e kānana i nā haneli haneli o nā hoʻokolohua hoʻokolohua e holo nei ma waena o ka ʻāina.

Me kā lākou mea hana pono pilikino, hiki iā ʻoe ke ʻike i ka hoʻokolokolo e pili ana i kāu ʻano maʻi ʻaʻai umauma kikoʻī a me kāu mau pono ponoʻī. Ma ke komo ʻana i kahi hoʻokolohua hoʻokolohua, ʻaʻole hiki iā ʻoe ke komo i nā lāʻau lapaʻau hōʻano hou a me nā hoʻoponopono e kū mai nei no MBC, akā hāʻawi ʻoe i ka wā e hiki mai ana i ka mālama ʻana i ka maʻi ʻaʻai umauma.

7. Holo i kou mau hoaaloha me Lotsa Helping Hands

Makemake paha kāu mau hoaaloha a ʻohana paha e kōkua, akā ʻaʻohe ou manawa a nānā paha e hoʻonohonoho i kā lākou kōkua ma ke ʻano kūpono loa. Makemake pū ka poʻe e makemake nui e kōkua ke ʻike koke lākou i ka mea āu e pono ai. ʻO kēia kahi o kahi hui i kapa ʻia ʻo Lotsa Helping Hands e komo i loko.

Ke hoʻohana nei i kā lākou pūnaewele a i ʻole polokalamu kelepona, hiki iā ʻoe ke hōʻuluʻulu i kāu kaiāulu o nā mea kōkua. A laila, e hoʻohana i kā lākou Alemanaka Kōkua e kau i nā noi no ke kākoʻo. Hiki iā ʻoe ke noi i nā mea e like me ka meaʻai, ka holo lio, a me ka mālama pēpē ʻana. Hiki i kāu mau hoaaloha a me kou ʻohana ke kau inoa e kōkua a hoʻouna ka polokalamu iā lākou i nā hoʻomanaʻo.

8. Nā limahana kaiaulu

Hoʻomaʻamaʻa nā limahana hana kaona Oncology i ka poʻe loea e hana e kōkua i ka maʻalahi ʻana o ka maʻi ʻaʻai a pau iā ʻoe a me kāu mau keiki ma nā ʻano a pau e hiki ai ʻO kekahi o ko lākou mākau ka:

• ke hāʻawi nei i ke kākoʻo naʻau e hōʻemi i ka hopohopo a hoʻonui i ka lana
• ke aʻo aku nei iā ʻoe i nā ala hou o ka pale ʻana
• ke kōkua nei iā ʻoe e hoʻomaikaʻi i ke kamaʻilio ʻana me kāu hui kauka a me kāu poʻe keiki
• hāʻawi iā ʻoe i ka ʻike e pili ana i ka lāʻau
• ke kōkua nei me ka hoʻolālā kālā a me ka ʻinikua
• ke hāʻawi nei iā ʻoe i ka ʻike e pili ana i nā kumuwaiwai ʻē aʻe i kou kaiāulu

E noi i kāu kauka no kahi hāʻawi i kahi limahana oncology. Hiki iā ʻoe ke hoʻohui pū me kahi limahana kaiaulu ma ke kāhea ʻana i ka Hopeline maʻi ʻole ʻo CancerCare ma 800-813-HOPE (4673).

9. Nā polokalamu kōkua kālā

Hiki i nā pila lapaʻau ke hōʻiliʻili me ka hoʻonui i nā lilo e hiki mai ana me ka hānai ʻana i nā keiki. Nui nā hui e hāʻawi i ke kōkua kālā i ka poʻe nele. E noi i kāu limahana kaiaulu no ke kōkua e noi nei no kēia ʻano kōkua.

• Kōkua Waiwai ʻo CancerCare
• Manaʻo hemahema
• ʻO ka Foundation Network Access Access Foundation
• Ke Kālā Poni
• ʻO ka Foundation American Cancer Breast Cancer
• ʻO nā polokalamu kīnā o ka U.S. Social Security a me ka Security Suplemental Security Income

Hāʻawi ka hapanui o nā ʻoihana lāʻau i nā lāʻau i hoʻemi ʻia nā kumukūʻai a i ʻole e hāʻawi i kahi coupon e uhi ai i nā lilo copay. Hiki iā ʻoe ke ʻike i ka ʻike kikoʻī e pili ana i ke kūpono a me ka uhi ʻana ma ka pūnaewele o ka ʻoihana pharma a i ʻole ma ka pūnaewele no kahi inoa o ka lāʻau āu i kuhikuhi ai.

10. Nā puke

He paʻakikī paha kāu mau keiki i ke kū ʻana i kāu maʻi ʻaʻai. He mea nui ka mālama ʻana i ke kamaʻilio pū me lākou, akā ʻo ka hoʻomaka ʻana o ke kamaʻilio hiki ke paʻakikī.

Eia kekahi mau puke e ʻimi e kōkua i nā mākua e kamaʻilio me kā lākou keiki e pili ana i ka maʻi ʻaʻai a me ka mālama ʻana.

• I loko o ka Māla a Mommy: He puke e kōkua i ka wehewehe ʻana i ka maʻi ʻaʻai i nā keiki ʻōpio
• He aha ka mea me ka makuahine o Bridget? Hōʻike ʻo Medikidz i ka maʻi ʻaʻai umauma
• ʻAʻohe lauoho: wehewehe i kāu maʻi ʻaʻai a me Chemo i nā keiki
• Nana, he aha ka maʻi ʻaʻai?
• Honi Pepeiao a Makemake ma nā ʻēheu
• He ʻAno no koʻu Māmā
• ʻO Māmā a me ka Polka-Dot Boo-Boo

11. Blogs

He ala maikaʻi ʻo Blogs e heluhelu ai i nā moʻolelo o nā poʻe ʻē aʻe e hele nei i kekahi o nā ʻike like me ʻoe.

Eia kekahi mau blog e nānā no ka ʻike i hilinaʻi ʻia a me kahi kaiāulu o ke kākoʻo.

• Ola ʻōpio
• Ke noho nei ma ʻō aku o ka maʻi ʻaʻai
• E ola ke ola
• ʻO koʻu maʻi hānai chic
• Ka maʻi ʻaʻai umauma? Akā Kauka ... ʻIno wau i ka Pink!
• Makemake kekahi mau kaikamahine i nā hoʻolauleʻa

12. Nā hui kākoʻo

ʻO ka hui ʻana i nā wahine a me nā makuahine ʻē aʻe e kaʻana like i kāu hōʻailona hiki ke lilo i kumu nui o ke kākoʻo a me ka hōʻoia. ʻO kahi hui kākoʻo i hoʻolaʻa pono ʻia i nā mea maʻi me ka maʻi metastatic ka mea kōkua nui iā ʻoe. Hiki ke ʻike ʻia nā METAvivor's Peer to Peer Support Groups ma o ʻAmelika Hui Pū ʻIa.

Hiki iā ʻoe ke nīnau i kāu kauka lawelawe a limahana paha inā aia kekahi mau hui kākoʻo MBC kūloko a lākou e ʻōlelo ai.

13. Kumu aʻoaʻo hoʻokahi

ʻAʻole pono ʻoe e alo i ka maʻi ʻaʻai wale. Inā makemake ʻoe i ka mea aʻo hoʻokahi a ma kahi o ke kākoʻo o ka hui, e noʻonoʻo e loaʻa i kahi "Mentor Angel" me Imerman Angels.

14. Pūnaewele aʻo hilinaʻi ʻia

Hiki iā ia ke hoʻowalewale iā google i nā mea āpau e pili ana i ka MBC, akā hiki i ka nui o ka ʻike hewa, ka ʻike i hala ʻole, a me ka ʻike piha ʻole ma ka pūnaewele. E hoʻohana i kēia mau pūnaewele hilinaʻi e kōkua i ka pane ʻana i kāu nīnau.

E noi i kāu kauka no ka ʻike hou aku inā ʻaʻole hiki iā ʻoe ke ʻike i kāu mau pane mai kēia mau pūnaewele:

• ʻO ka Foundation National Cancer Breast
• ʻAhahui Kanaka ʻAmelika
• Breastcancer.org
• Pūnaewele Kanaka Maʻi Metastatic
• Kumukanawai ʻo Susan G. Komen

15. Inā hāpai ʻoe

Inā hāpai ʻoe a ʻike ʻia me ka maʻi ʻaʻai, Hope no ʻelua ... Hāʻawi ka hāpai me ka maʻi ʻaʻai maʻi manuahi i ke kākoʻo manuahi. Hiki i ka hui ke hoʻohui iā ʻoe me nā poʻe ʻē aʻe e hāpai ana i ka maʻi ʻaʻai.

Lawe aku

E ʻimi i ke kōkua inā pono ʻoe. Hiki ke kaupalena ʻia kou ikehu ʻoiai ʻoe e mālama ana i ka maʻi ʻaʻai, no laila ʻo ka prioritization ke kī. Ke noi nei i ke kōkua ʻaʻole ia kahi hiʻohiʻona o kāu hiki. He ʻāpana ia o ka hana ʻana i kāu mea maikaʻi loa e mālama ai i kāu poʻe keiki ke hoʻokele nei i ke ola me MBC.