ʻO Polycythemia Vera: Prognosis a me ke kūlana ola

Anter

• Ka hoʻomaopopo ʻana iā PV
• Ke kāohi nei iā PV
• Nānā PV
• Outlook no PV

ʻO Polycythemia vera (PV) kahi maʻi ʻaʻa koko laha ʻole. ʻOiai ʻaʻohe mea ola no PV, hiki ke kāohi ʻia ma o ka mālama ʻana, a hiki iā ʻoe ke noho me ka maʻi no nā makahiki he nui.

Ka hoʻomaopopo ʻana iā PV

Hoʻokumu ʻia ka PV e ka hoʻololi a i ʻole nā ​​mea maʻamau ʻole i nā ʻāpana o nā puʻupuʻu i loko o kou iwi iwi. Mānoanoa ʻo PV i kou koko ma o ka hana ʻana i nā hunaola ʻulaʻula he nui, i hiki ai ke ālai i ke kahe o ke koko i nā meaola a me nā ʻano.

ʻAʻole ʻike ʻia ke kumu pono o ka PV, akā ʻo ka poʻe me ka maʻi e loaʻa ka loli i ka JAK2 ʻāpana Hiki i kahi hōʻoia koko ke ʻike i ka hoʻololi.

ʻIke ʻia ka PV ma ka hapanui o nā mākua. ʻAʻohe loaʻa iki i kekahi ma lalo o ka makahiki 20.

Ma kahi o 2 o kēlā me kēia 100,000 poʻe i hoʻopilikia ʻia e ka maʻi. ʻO kēia mau kānaka, e hoʻomohala i nā pilikia lōʻihi e like me myelofibrosis (scarring iwi ʻōiwi) a me leukemia.

Ke kāohi nei iā PV

ʻO ke kumu nui o ka mālama ʻana ke kaohi ʻana i kāu helu o ke kaola koko. Kōkua ka hōʻemi ʻana i ka nui o nā hunaola ʻulaʻula e pale aku ai i nā clots i hiki ke alakaʻi i ka hahau, ka puʻuwai puʻuwai, a i ʻole nā ​​mea ʻino ʻino ʻē aʻe. ʻO ia paha ka mālama ʻana i nā kiko keokeo a me nā helu platelet. ʻO ke kaʻina hana like e hōʻailona ai i ka hana nui ʻana o nā hunaola ʻulaʻula me he mea lā e hōʻailona ana i ka overproduction o nā keʻokeʻo koko keʻokeʻo a me nā platelet. Helu ke koko kiʻekiʻe, ʻaʻohe mea i ke ʻano o ke kahe o ke koko, e hoʻonui i ka makaʻu o ke koko a me nā pilikia ʻē aʻe.

I ka wā o ka mālama ʻana, pono ʻoe i kāu kauka e kiaʻi mau iā ʻoe e kiaʻi no ka thrombosis. Hana ʻia kēia i ka wā e ulu ai ke kōkuʻu koko i loko o ke aʻa a i ʻole aʻaʻa a ālai i ke kahe o ke koko i kāu mau mea nui a i ʻole nāʻaʻaʻa.

ʻO ka hoʻopiʻi lōʻihi lōʻihi o ka myelofibrosis. Hana ʻia kēia ke wili ʻia kou iwi iwi a ʻaʻole hiki ke hana hou i nā hunaola olakino e holo pono. Hiki iā ʻoe a me kāu hematologist (kahi loea i nā maʻi o ke koko) ke kūkākūkā me ka loaʻa ʻana o kahi iwi o ka iwi iwi ma muli o kāu hihia.

ʻO Leukemia kahi pilikia lōʻihi loa o ka PV. ʻO ke kikoʻī, ʻo ka leukemia myeloid koʻikoʻi (AML) a me ka leukemia lymphoblastic huikau (ALL) e pili me polycythemia vera. ʻOi aku ka maʻamau o ka AML. Pono ʻoe i kahi lapaʻau kūikawā e kia ana hoʻi i ka mālama ʻana i ka leukemia inā ulu kēia pilikia.

Nānā PV

Kākaʻikahi ka PV, no laila he mea nui ka nānā mau ʻana a me ka nānā ʻana. Ke ʻike mua ʻia ʻoe, makemake paha ʻoe e ʻimi i kahi hematologist mai kahi kikowaena olakino nui. E ʻike hou kēia mau loea koko e pili ana i ka PV. A ua mālama paha lākou i ka mālama no kekahi me ka maʻi.

Outlook no PV

Ke ʻike ʻoe i kahi hematologist, e hana pū me lākou e hoʻonohonoho i kahi manawa hoʻonohonoho. E hilinaʻi kāu papa hoʻonohonoho i ka holomua o kāu PV. Akā pono ʻoe e ʻike i kāu hematologist e pili ana i hoʻokahi manawa i ka mahina i hoʻokahi manawa i kēlā me kēia ʻekolu mau mahina e pili ana i ka helu o ke kele koko, ka makahiki, ke olakino holoʻokoʻa, a me nā ʻōuli ʻē aʻe.

Hiki i ka nānā mau ʻana a me nā mālama ʻana ke kōkua i ka hoʻonui ʻana i ke kali o kou ola a hoʻomaikaʻi i kou ola holoʻokoʻa. Ma muli o ka nui o nā kumu, ua hōʻike ʻia ke ola o kēia manawa mai ka manawa o ke kuhi. ʻO ka makahiki, ke olakino holoʻokoʻa, ka helu ʻana o ke koko, ka pane ʻana i ka mālama ʻana, nā genetics, a me nā koho nohona, e like me ka puhipaka ʻana, he hopena nā mea āpau i ka holo o ka maʻi a me ka nānā lōʻihi.