ʻO ka male ʻana me ka Rheumatoid Arthritis: Kaʻu Moʻolelo

Anter

• 1. E pili ana iā ʻoe a me kāu mea nui ʻē aʻe
• 2. E noʻonoʻo e hoʻolimalima i kahi hoʻolālā, inā hiki iā ʻoe
• 3. Mai makaʻu e noi i ke kōkua
• 4. E hoʻopaʻa iā ʻoe iho
• 5. Mai hana ia mea i ka lā āpau
• 6. Mai hoʻolālā i kahi pūpū o nā koho a nā kauka
• 7. K.I.S.S.
• 8. E komo i nā kāmaʻa ʻoluʻolu
• 9. Mai kāhili i nā mea liʻiliʻi
• 10. ʻO ka lā male male he wahi liʻiliʻi wale nō ia o kou ola pū
• ʻO ka lawe lawe ʻana

Kiʻi na Mitch Fleming Photography

ʻO ka male ʻana kahi mea aʻu i lana ai. Eia naʻe, i ka manawa i ʻike ʻia me ka lupus a me ka rheumatoid arthritis i ka makahiki 22, ua manaʻo ʻia ka male ʻana ʻaʻole paha e hiki.

ʻO wai e makemake e makemake e lilo i ʻāpana o kahi ola paʻakikī e nā maʻi maʻi mau? ʻO wai e makemake e hoʻohiki "i ka maʻi a me ke olakino" ke ʻoi aku ia ma mua o kahi manaʻo kuhiakau wale nō? Mahalo, ʻoiai ʻaʻole ia a hiki i koʻu mau makahiki 30, ua ʻike wau i kēlā kanaka naʻu.

ʻOiai inā ʻaʻole ʻoe maʻi maʻi mau, ʻo ka hoʻolālā ʻana i ka male ʻana hiki ke lilo i mea kaumaha. Aia nā makaʻu i loaʻa i nā wahine mare a pau e pili ana i kā lākou lā male.

E loaʻa anei iaʻu ka lole kūpono a paʻa paha ia i ka lā o ka male? E maikaʻi anei ka wā? E ʻoliʻoli kā mākou poʻe kipa i ka meaʻai? E mahalo paha lākou i nā kikoʻī pilikino a mākou i hoʻokomo ai i loko o kā mākou male male kuʻuna?

A laila aia nā makaʻu a kahi wahine me ka rheumatoid arthritis i kā lākou lā male.

E maikaʻi paha wau a hiki ke hele i lalo i ke ala me ka ʻole o ka ʻeha? E lawa anei koʻu ikehu no ka hulahula mua a aloha i nā mea kipa a mākou? E hoʻouna ka pilikia o ka lā iaʻu i kahi lapalapa?

Ma hope o koʻu ola ʻana i ka ʻike iaʻu iho, ua loaʻa iaʻu kahi manaʻo e pili ana i kekahi o nā pilikia, nā ʻūpiki, a me nā hana kōkua i hiki i nā mea e noho nei me nā maʻi maʻi mau ke lawe. Eia nā mea he 10 e hoʻomanaʻo.

1. E pili ana iā ʻoe a me kāu mea nui ʻē aʻe

E loaʻa iā ʻoe ka nui o nā ʻōlelo aʻoaʻo i noi ʻole ʻia, akā pono ʻoe e hana i nā mea e pono ai ʻoe. He 65 ko mākou nui i kā mākou male male. Ua hana mākou i ka mea i hana no mākou.

Aia kekahi mau manawa ke nīnau wau inā ʻaʻole mākou e elope wale nō no ka walaʻau a haʻi. ʻO ka poʻe aloha a kākoʻo iā ʻoe ma laila no ka mea ʻole, no laila inā e namunamu nā poʻe, e ʻae iā lākou. ʻAʻole hiki iā ʻoe ke hōʻoluʻolu i nā mea āpau, akā ʻaʻole pili iā lākou.

2. E noʻonoʻo e hoʻolimalima i kahi hoʻolālā, inā hiki iā ʻoe

Kiʻi na Mitch Fleming Photography

Ua hana mākou i nā mea āpau iā mākou iho, mai ke ʻohi ʻana a me ka hoʻouna ʻana i nā kono i ka hoʻomākaukau ʻana i kahi. ʻO wau 'ʻAno A' no laila hapa kēlā pehea aʻu e makemake ai, akā he hana nui ia. Loaʻa iā mākou kahi mea hoʻonohonoho no ka lā, ʻo ia ka mea ma laila e hoʻokuʻu iā mākou i ke ala, a ʻo ia wale nō.

3. Mai makaʻu e noi i ke kōkua

Ua hāʻawi ka lima o koʻu makuahine a me kekahi o kaʻu mau hoaaloha maikaʻi e kōkua iā mākou e hoʻonohonoho i kahi i ka pō ma mua o kā mākou male ʻana. He ala maikaʻi loa ia e hoʻopaʻa a hoʻolilo manawa pū, akā ʻo ia hoʻi he poʻe kaʻu e hiki ai ke hilinaʻi e hoʻokō i kaʻu ʻike me ka ʻole e hana wau i nā mea āpau - a me ka uku ʻole i kekahi e hana.

4. E hoʻopaʻa iā ʻoe iho

ʻAʻole makemake ʻoe e luhi loa i nā hoʻolālā āpau i hiki ʻole iā ʻoe ke leʻaleʻa i ka male maoli. Ua hoʻonohonoho pono wau, a ua hoʻāʻo e nānā pono i nā mea ma mua o ka papa inoa i mea ʻole e waiho ʻia nā mea nui a hiki i ka minuke hope loa.

5. Mai hana ia mea i ka lā āpau

Aia wau i loko o ʻelua mau male i ke kauwela i hala. Mai ka wā i hoʻomaka ai wau e mākaukau a hiki i ka manawa i hala ai ka hanana, ua hala he 16 mau hola maikaʻi.

No kaʻu male male, ua hoʻomaka mākou e hoʻomākaukau ma ka hola 8 o ka manawa, aia ka hanana ma ka hola 12 o ke ahiahi, a hoʻomaka ka hoʻomaka ʻana o nā mea e hoʻomaka i ka hola 3 o ke ahiahi. I ka hoʻomaʻemaʻe manawa, ua kāʻili ʻia wau.

6. Mai hoʻolālā i kahi pūpū o nā koho a nā kauka

Kiʻi ʻia e Leslie Rott Welsbacher

ʻOiai paha he manawa hoʻomaha paha kāu, e hōʻalo i ka hoʻonohonoho ʻana i nā hui a nā kauka i koho i ka pule o kāu male. Ua manaʻo wau e akamai ana wau i ka hoʻonohonoho ʻana i nā manawa i ka wā i loaʻa ai ka manawa hoʻomaha mai ka hana, akā he mea ʻole wale nō ia.

Nui nā mea āu e pono ai e hana ma mua o kāu male ʻana. Inā ʻaʻole ʻoe he kumu e ʻike ai i kāu kauka a i ʻole nā ​​kauka, mai kaomi ʻole iā ʻoe iho. Ua piha ka hapa nui o ke ola maʻi mau me nā wā i hoʻopaʻa ʻia.

7. K.I.S.S.

ʻOiai he nui ka smoochings i kāu lā male, ʻaʻole ia ka manaʻo. Ma kahi, "E Mālamalama, Lapuwale!"

Me kahi male liʻiliʻi, he pāʻina male liʻiliʻi kā mākou. ʻO koʻu kaikuahine koʻu Maid of Honor aʻo ke kaikaina o kaʻu kāne ka kāne maikaʻi. ʻO ia kēlā.

ʻO ka manaʻo ʻaʻole pono mākou e hoʻonohonoho i nā tona o nā kānaka, ʻaʻohe mākou ʻaina awakea hoʻomaʻamaʻa, a ua maʻalahi wale ia i nā mea. Loaʻa iā mākou ka hana a me ka hoʻokipa ma kahi like no laila ʻaʻole pono mākou e huakaʻi i kēlā me kēia wahi.

8. E komo i nā kāmaʻa ʻoluʻolu

Kiʻi na Mitch Fleming Photography

He ʻelua mau kāmaʻa aʻu no ka lā nui. ʻO ka mea mua he mau kuʻekuʻe wāwae moemoeā aʻu i komo ai e hele i ke ala a ʻike wau e pono wau e hemo koke ma hope o ka hana. ʻO ka lua he kāmaʻa sneakers ʻōmaʻomaʻo nani wau i komo ai i ke koena o ka manawa, me kā mākou hulahula mua.

9. Mai kāhili i nā mea liʻiliʻi

Makemake nā kānaka āpau i kā lākou male ʻana e hemolele, akā inā aia kekahi mea a kekahi me ka maʻi maʻi ʻike ʻole, ʻaʻole holo mau nā mea e like me ka hoʻolālā.

ʻAʻole ʻokoʻa kāu lā male, no ka nui o kāu hoʻolālā. Ua pilikia mākou me ka ʻōnaehana kani ma ko mākou wahi. Hiki paha iā ia ke luku, akā ʻaʻole wau i manaʻo ua ʻike kekahi.

10. ʻO ka lā male male he wahi liʻiliʻi wale nō ia o kou ola pū

Maʻalahi ke kahili ʻia i ka manaʻo o ka male a me nā mea āpau e hele mai me ka lā male, keu hoʻi inā hopohopo ʻoe ʻaʻole e hiki ke hana ʻia nou. Akā ʻo ka ʻoiaʻiʻo, ʻo ka male ponoʻī he mau hola wale nō ia mai ke koena o kou ola pū.

ʻO ka lawe lawe ʻana

Inā ʻoe e nānā i kāu mau pono ponoʻī a hoʻolālā i mua, e lilo ana kāu lā male i kēlā lā āu i moeʻuhane ai - kahi āu e poina ʻole ai. Naʻu, hauʻoli. ʻOiaʻiʻo, ua luhi wau i ka hopena o ia, akā ua kūpono ia.

Ua loaʻa ʻo Leslie Rott Welsbacher me ka lupus a me ka rheumatoid arthritis i ka makahiki 2008 i ka makahiki 22, i kona makahiki mua o ke kula puka puka. Ma hope o ka hōʻoia ʻia ʻana, ua loaʻa ʻo Leslie i kahi PhD ma Sociology mai ke Kulanui o Michigan a me kahi kekelē laeoʻo i ke kākoʻo olakino mai kā Sarah Lawrence College. Kākau ʻo ia i ka blog e kiʻi kokoke iā ʻoe iho, kahi e puʻunaue ai i kona mau ʻike i ke kū ʻana me ka noho ʻana me nā maʻi maʻi mau, me ka ʻakaʻaka. He loio hoʻomanawanui ʻo ia e noho ana ma Michigan.