ʻO Cleidocranial dysplasia: he aha ia, nā ʻano a me ka mālama ʻana

Anter

• Nā hiʻohiʻona nui
• Pehea e hōʻoia ai i ke kuhi
• ʻO wai ka mea hiki ke loaʻa kēia ʻano
• Pehea e hana ai i ka lāʻau
• 1. Nā pilikia kahua niho
• 2. Nā maʻi haʻi waha
• 3. Sinusite pinepine
• 4. Nā iwi nāwaliwali

ʻO ka Cleidocranial dysplasia kahi ʻano laha ʻole a me ka hoʻoilina hoʻoilina ma laila kahi lohi i ka ulu ʻana o ka iwi poʻo a me nā iwi poʻohiwi o ke keiki, a ʻo nā niho hoʻi.

ʻOiai paha he nui nā hihia o kēia ʻano i loko o ka ʻohana like, maʻamau ka ʻokoʻa a me nā ʻōuli i hōʻike ʻia mai kekahi kanaka a i kekahi aʻe, a no laila, pono e loiloi pono ʻia kēlā me kēia hihia e ka pediatrician.

Nā hiʻohiʻona nui

ʻO nā hiʻohiʻona o ka cleidocranial dysplasia e loli ākea mai kēlā me kēia kanaka, akā naʻe, ʻo ka mea maʻamau e hoʻopili ʻia:

• Hoopanee i ka panina ana o na molake i ka bebe;
• Pākuʻi i ka lae a me ka lae;
• Ihu ākea loa;
• ʻOi aku ke kiʻekiʻe ma mua o ka hale o ka waha;
• ʻO nā clavicle pōkole a i ʻole ʻole;
• Poʻohiwi ololi a maʻalahi hoʻi;
• Lohi ka ulu ʻana o nā niho.

Eia hou, hiki i ka dysplasia ke hoʻopili i ka iwi kuamoo, a i kēia mau hihia, kū mai kekahi mau pilikia ʻē aʻe, e like me scoliosis a me ke kino pōkole, no ka laʻana. Pēlā nō, hiki i ka hoʻololi ʻana o nā iwi o ka maka ke hopena i ka hoʻololi ʻana i nā sinus, i hiki ai i ke keiki me ka cleidocranial dysplasia e hoʻouka pinepine i ka sinusitis.

Pehea e hōʻoia ai i ke kuhi

ʻO ka hōʻailona o cleidocranial dysplasia hana mau ʻia e ka pediatrician ma hope o ka nānā ʻana i nā ʻano o ke ʻano. No laila, pono paha e hana i nā hoʻokolohua diagnostics, e like me nā kukuna X, e hōʻoia i nā loli o nā iwi i ka iwi poʻo a i ʻole ka umauma, no ka laʻana.

ʻO wai ka mea hiki ke loaʻa kēia ʻano

ʻOi aku ka maʻamau o Cleidocranial dysplasia i nā keiki kahi i loaʻa ai ka malformation o kekahi a i ʻole nā ​​mākua ʻelua, akā naʻe, no ka hopena o ka loli, hiki ke ala aʻe hoʻi ka displasia cleidocranial i nā keiki o ka poʻe i loaʻa ʻole nā ​​hihia ʻē aʻe i loko o ka ʻohana, ma muli o ka hoʻololi kūlohelohe.

Eia nō naʻe, kākaʻikahi loa ka displasia cleidocranial, me hoʻokahi hihia wale nō i kēlā me kēia 1 miliona hānau ma ka honua holoʻokoʻa.

Pehea e hana ai i ka lāʻau

I nā manawa he nui, ʻaʻole pono e hoʻokō i kekahi ʻano o ka mālama ʻana e hoʻoponopono i nā loli i hana ʻia e cleidocranial dysplasia, no ka mea, ʻaʻole ia e pale i ka ulu ʻana o ke keiki, ʻaʻole hoʻi lākou e pale iā ia mai ke ʻano o ke ola maikaʻi.

Eia nō naʻe, i nā hihia o ka malformation ʻoi aku ka nui, he mea maʻamau no ke kauka e koi aku i nā ʻano lapaʻau like ʻole, e like me ka loli e mālama ʻia.

1. Nā pilikia kahua niho

I ka hihia o nā pilikia niho a me nā loli, ʻo ka pahuhopu e hoʻomaikaʻi i ka helehelena o ka waha e ʻae i ke keiki e ulu me ka hilinaʻi iā ia iho, a ʻoi aku ka maʻalahi o ka nau ʻana i ka meaʻai.

No laila, he mea nui e kuhikuhi i kahi kauka niho a i ʻole orthodontist e nānā i ka pono e noi i kekahi ʻano mīkini a i ʻole ke ʻoki kino.

2. Nā maʻi haʻi waha

Ma muli o nā loli i ka maka a me nā niho, pilikia paha kekahi mau keiki me ka displasia cleidocranial i ka ʻōlelo pololei. No laila, hiki i ka pediatrician ke kuhikuhi i ka hoʻokō ʻana i nā kau ʻōlelo haʻi ʻōlelo.

3. Sinusite pinepine

No ka mea maʻamau ka sinusitis i ka poʻe i loaʻa kēia ʻano, hiki i ke kauka ke hōʻike he mau hōʻailona hōʻailona mua ia e alakaʻi ʻia ai i ka kānalua o kahi sinusitis, e like me ka huhū, ke kū ʻana o ka fiva māmā a i ʻole ka ihu ihu, i mea e hoʻomaka ai ka mālama ʻana e like me ke hiki koke a kōkua i ke ola ʻana.

4. Nā iwi nāwaliwali

I ka hanana cleidocranial dysplasia ke kumu o ka nāwaliwali o nā iwi, hiki i ke kauka ke aʻoaʻo i ka supplementation me ka calcium a me ka wikamina D, no ka laʻana.

Ma waho o kēia mau mea āpau, ma loko o ka ulu ʻana o ke keiki he mea nui ia e kipa pinepine i ke kauka lapaʻau a me ka orthopedist, e nānā inā kū mai nā pilikia hou e pono ai e hoʻomaikaʻi e hoʻomaikaʻi ai i ke ola o ke keiki.