Hoʻoneʻe iwi iwi i nā keiki - hoʻokuʻu
Loaʻa i kāu keiki kahi ʻōiwi iwi. He 6 a 12 paha mau mahina a ʻoi paha no ka helu ʻana o ke koko o kāu keiki a me ke ʻōnaehana paleʻāina e hoʻōla pono. I kēia manawa, ʻoi aku ka nui o ka pilikia o ka maʻi, ke kahe ʻana o ke koko, a me nā pilikia o ka ʻili ma mua o ka hoʻoliʻiliʻi. E hāhai i nā ʻōkuhi mai ka lawelawe mālama ola o kāu keiki pehea e mālama ai i kāu keiki ma ka home.
Nawaliwali nō ke kino o kāu keiki. Hoʻokahi paha makahiki ka lōʻihi o ka manaʻo o kāu keiki e like me kā lākou i hana ai ma mua o kā lākou hoʻoliʻiliʻi. E luhi luhi paha kāu keiki a malia paha makemake ʻiʻo i ka ʻai.
Inā loaʻa i kāu keiki ka iwi iwi mai haʻi ʻē aʻe, e nānā i nā hōʻailona o ka maʻi graft-versus-host (GVHD). E noi i ka mea hāʻawi e haʻi iā ʻoe i nā hōʻailona o GVHD āu e nānā ai.
E mālama e hōʻemi i ka pilikia o kāu maʻi i loaʻa i kāu keiki e like me ka ʻōlelo a kāu hui mālama ola.
- ʻO ka mālama ʻana i ka maʻemaʻe o kou hale he mea nui ia e pale aku ai i ka maʻi. Akā mai holoi a hoʻomaʻemaʻe paha i ka wā o kāu keiki i loko o ka lumi.
- E mālama i kāu keiki mai ka lehulehu.
- E noi i nā malihini i loaʻa i ke anuanu e komo i ka pale maka, ʻaʻole hoʻi e kipa.
- Mai hoʻokuʻu i kāu keiki e pāʻani i ka pā a lawelawe i ka lepo a hiki i ka wā e ʻōlelo ai kāu mea hoʻolako ua mākaukau ka pale pale o kāu keiki.
E mālama pono i kāu keiki i nā ʻōkuhi no ka ʻai palekana ʻana a me ka inu ʻana i ka wā o ka mālama ʻana.
- Mai ʻae i kāu keiki e ʻai a inu hoʻi i kekahi mea hiki ʻole ke kuke ʻia a hōʻino ʻia paha ma ka home a i ka wā e ʻai ana i waho. E aʻo pehea e kuke ai a mālama pono ai i nā meaʻai.
- E mālama pono i ka wai e palekana.
E hoʻomaʻemaʻe i kāu keiki e holoi i ko lākou mau lima me ke kopa a me ka wai pinepine, e like me:
- Ma hope o ka hoʻopā ʻana i nā wai o ke kino, e like me ka mucous a i ʻole ke koko
- Ma mua o ka lawelawe ʻana i ka meaʻai
- Ma hope o ka hele ʻana i ka lua
- Ma hope o ka hoʻohana ʻana i ke kelepona
- Ma hope o ka ma waho
E nīnau i ke kauka he aha nā lāʻau āpau e pono ai kāu keiki a i ka wā hea e loaʻa ai iā lākou. Pono e hōʻole ʻia i kekahi mau lāʻau āpau (vaccine live) a hiki i ka wā e mākaukau ai ka pale pale o kāu keiki e pane kūpono.
Nawaliwali ka pale pale o kāu keiki. No laila he mea nui e mālama pono i ke olakino waha o kāu keiki. E kōkua kēia i ka pale ʻana i nā maʻi i hiki ke lilo i mea koʻikoʻi a pālahalaha. E haʻi i kāu kauka niho o kāu keiki ua loaʻa i kāu keiki kahi ʻōiwi iwi. Pēlā e hiki ai iā ʻoe ke hana pū e hōʻoia i ka mālama waha maikaʻi ʻana no kāu keiki.
- E palaki kāu keiki i kona mau niho a me nā gums 2 a 3 mau manawa i ka lā no 2 a 3 mau minuke i kēlā me kēia manawa. E hoʻohana i kahi palaki niho me nā bristles palupalu. Floss mālie hoʻokahi i ka lā.
- E hoʻomaloʻo ka ea i ka palaki niho ma waena o nā palaki.
- E hoʻohana i ka toothpaste me ka fluoride.
- Kauoha ke kauka a kāu keiki i kahi holoi waha. E hōʻoia i ka loaʻa ʻole o ka wai ʻona.
- Mālama i nā lehelehe o kāu keiki me nā huahana i hana ʻia me ka lanolin. E haʻi i ke kauka inā loaʻa i kāu keiki ka ʻeha o ka waha a i ʻole ka ʻeha.
- Mai ʻae i kāu keiki e ʻai i nā meaʻai a me nā mea inu i loaʻa ka nui o ke kō i loko o lākou. Hāʻawi iā lākou i nā gum a me nā popsicle kō ʻole kō a i ʻole nā candies paʻakikī kō ʻole.
E mālama i nā pale umauma o kāu keiki, nā mea hoʻopaʻa, a i ʻole nā huahana niho ʻē aʻe:
- Hiki i nā keiki ke hoʻomau i ka hoʻokomo ʻana i nā mīkini hāmeʻa e like me nā mea paʻa inā lōʻihi ke kūpono.
- Hoʻopaʻa hoʻomaʻemaʻe a me nā mea hoʻopaʻa nā hihia i kēlā me kēia lā me kahi hopena antibacterial. E noi i kāu kauka a kauka niho paha e paipai i hoʻokahi.
- Inā hoʻonāukiuki nā ʻāpana o ka paʻa i nā pale umauma o kāu keiki, e hoʻohana i nā kiaʻi waha a i ʻole ka wax niho e pale ai i ka nāhena o ka waha lahilahi.
Inā loaʻa i kāu keiki kahi laina venous waena a PICC paha, e aʻo pehea e mālama ai ia.
- Inā haʻi ka mea hāʻawi a kāu keiki iā ʻoe he haʻahaʻa ka helu platelet o kāu keiki, e aʻo pehea e pale ai i ke kahe i ka wā o ka lāʻau.
- Hāʻawi i kāu keiki i ka protein a me nā calories e hoʻomau i ko lākou kaumaha.
- E noi i ka mea hāʻawi i kāu keiki e pili ana i nā mea hoʻopiha wai hiki ke kōkua iā lākou e lawa i ka nui o nā calories a me nā meaola.
- Pale i kāu keiki mai ka lā. E nānā pono lākou i ka pāpale me ka lihi ākea a me ka sunscreen me kahi SPF o 30 a ʻoi paha ma luna o nā ʻili i hōʻike ʻia.
E mālama ke pāʻani kāu keiki me nā mea pāʻani:
- E hōʻoia e pāʻani wale kāu keiki me nā mea pāʻani e hiki ke hoʻomaʻemaʻe maʻalahi. Hōʻalo i nā mea pāʻani hiki ʻole ke holoi ʻia.
- E holoi holoi holoi holoi holoi holoi holoi. E hoʻomaʻemaʻe i nā mea pāʻani ʻē aʻe i ka wai wela, wai kopa.
- Mai ʻae i kāu keiki e pāʻani me nā mea pāʻani a nā keiki ʻē aʻe i hoʻokomo ai i ko lākou waha.
- Hōʻalo i ka hoʻohana ʻana i nā mea pāʻani ʻauʻau e paʻa ana i ka wai, e like me nā pū kīkī a i ʻole nā mea pāʻani i hiki ke huki wai i loko.
E akahele me nā holoholona a me nā holoholona:
- Inā he pōpoki kāu, e mālama i loko. Mai lawe i nā pipi hou.
- Mai hoʻokuʻu i kāu keiki e pāʻani me nā holoholona ʻike ʻole ʻia. Hiki wawe ka maʻi a me nā nahu.
- Mai hoʻokuʻu i kāu keiki e hele kokoke i ka pahu ʻōpala o kāu pōpoki.
- E kamaʻilio i kāu mea hāʻawi inā he pipi āu a aʻo i ka manaʻo o kāu mea hāʻawi palekana no kāu keiki.
Ke hoʻomau nei i ka hana kula a hoʻi i ke kula:
- Pono ka hapa nui o nā keiki e hana i nā hana kula ma ka home i ka wā o ke ola hou ʻana. E kamaʻilio me ko lākou kumu e pili ana i ka hiki i kāu keiki ke hoʻomau i ka hana kula a noho pili me nā hoa papa.
- Hiki paha i kāu keiki ke loaʻa i ke kōkua kūikawā ma o ke Kānāwai Hoʻonohonoho Pono Kanaka (IDEA). E kamaʻilio me ka limahana kaiaulu no ka ʻike hou aku.
- Ke mākaukau kāu keiki e hoʻi i ke kula, e hui me nā kumu, nā kahu maʻi a me nā limahana o ke kula ʻē aʻe e kōkua iā lākou e hoʻomaopopo i ke kūlana olakino o kāu keiki. E hoʻonohonoho i nā kōkua kūikawā a mālama paha e pono ai.
Pono kāu keiki e mālama pono i ka mālama ʻana mai ke kauka transplant a kahu hānai no 3 mau mahina. I ka mua, pono e ʻike ʻia kāu keiki i kēlā me kēia pule. E mālama pono i nā wā koho.
Inā haʻi aku kāu keiki iā ʻoe e pili ana i nā manaʻo maikaʻi ʻole a i ʻole nā hōʻailona maikaʻi, e kāhea i ka pūʻulu mālama olakino o kāu keiki. Hiki i kahi hōʻailona ke lilo i hōʻailona hōʻailona o ka maʻi. E nānā no kēia mau ʻōuli:
- Fiva
- ʻO ke kīpē ʻole e hele a koko ʻole
- Kaʻi nui, ka luaʻi, a i ʻole ka make o ka makemake
- Hiki ʻole ke ʻai a inu paha
- Nawaliwali
- ʻO ka ʻulaʻula, ka pehu ʻana, a me ka hoʻokahe ʻana mai kēlā me kēia wahi i hoʻokomo ʻia kahi laina IV
- ʻEha ma ka ʻōpū
- Fever, chills, a sweats paha, he mau hōʻailona paha ia o kahi maʻi
- ʻO kahi wīwī o ka ʻili a palapū paha
- Jaundice (ʻili a ʻāpana keʻokeʻo o nā maka ke melemele)
- He maʻi ʻehaʻeha loa a ʻehaʻeha paha ke poʻo i hala ʻole
- He puʻu
- Hoʻopilikia i ka hanu ke hoʻomaha a i ʻole ke hana ʻana i nā hana maʻalahi
- Puhi ke ʻino
Transplant - iwi iwi - keiki - hoʻokuʻu; Ke kuʻi ʻana o ke koʻokoʻo Stem - keiki - hoʻokuʻu; ʻO ke transplant cell Hematopoietic stem - keiki - hoʻokuʻu; Hoʻoemi i ka ikaika, non-myeloablative transplant - keiki - hoʻokuʻu; Mini transplant - keiki - hoʻokuʻu; Ke kuʻi iwi ʻōpū Allogenic - keiki - hoʻokuʻu; Ke kuʻi iwi ʻōiwi Autologous - keiki - hoʻokuʻu; Ke hoʻololi i ke koko Umbilical - nā keiki - hoʻokuʻu
Huppler AR. Nā maʻi kūpikipiki o ka hematopoietic stem cell transplantation. I: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, eds. ʻO Puka Textbook of Pediatrics ʻo Nelson. 21st ed. Piladelapia, PA: Elsevier; 2020: chap 164.
ʻO wau A, Pavletic SZ. Ke transplantation o ke koʻokoʻo Hematopoietic. I: Niederhuber JE, Armitage JO, Kastan MB, Doroshow JH, Tepper JE, eds. ʻO Oncology Clinical ʻo Abboff. ʻElua huaʻōlelo Piladelapia, PA: Elsevier; 2020: chap 28.
Pūnaewele ʻo National Cancer Institute. Ke Keiki Hula Hematopoietic Kamaliʻi (PDQ®) - Mana Mana Mana Ola. www.kanaka.gov/types/childhood-cancers/child-hct-hp-pdq. Hoʻohou ʻia Iune 8, 2020. Loaʻa iā ʻOkakopa 8, 2020.
- Ke kuʻi ʻana o ka iwi iwi