Noho me kahi maʻi maʻi - hiki i nā poʻe ʻē aʻe

ʻO kahi maʻi maʻi kahi kūlana olakino lōʻihi e ʻaʻohe o lākou ola. ʻO nā laʻana o nā maʻi maʻi mau:

• ʻO ka maʻi Alzheimer a me ka dementia
• Pākuʻi
• Asthma
• Kanesa
• COPD
• Maʻi Crohn
• ʻO Cystic fibrosis
• Diabetes
• Epilepsy
• Maʻi maʻi puʻuwai
• HIV / AIDS
• Nā maʻi Mood (bipolar, cyclothymic, a me ke kaumaha)
• Sclerosis lehulehu
• Maʻi ʻo Parkinson

ʻO ka noho ʻana me nā maʻi maʻi hiki ke hoʻolilo iā ʻoe i kahi kaʻawale loa. E aʻo e pili ana i ka pili mau ʻana me nā poʻe e kōkua iā ʻoe e kūpale i kāu maʻi.

Kaʻana like ʻana a me ke aʻo ʻana mai nā poʻe i like ka manaʻo me ʻoe e hiki ke kōkua iā ʻoe e kūpale i kāu maʻi ponoʻī.

• E ʻike i kahi hui kākoʻo i kou wahi no nā poʻe i loaʻa ka maʻi maʻi like me ʻoe. Holo nā hui he nui a me nā haukapila i nā hui kākoʻo. E noi i kāu mea mālama ola pehea e loaʻa ai. ʻO kahi laʻana, inā he maʻi puʻuwai kou, hiki i ka ʻAhahui Puʻuwai ʻAmelika ke hāʻawi a ʻike paha i kahi hui kākoʻo i kou wahi.
• E ʻike i kahi hui pūnaewele. Aia nā pūnaewele pūnaewele a me nā hui kūkā e pili ana i nā kumuhana he nui, a ʻike paha ʻoe i kākoʻo i kēia ala.

Hiki paha iā ʻoe ke paʻakikī ke haʻi aku i nā poʻe ʻē aʻe he maʻi maʻi kou. Hopohopo paha ʻoe ʻaʻole lākou e makemake e ʻike e pili ana i ia mea a i ʻole e hoʻokolokolo lākou iā ʻoe. Hilahila paha ʻoe no kāu maʻi. He mau manaʻo maʻamau kēia. ʻO ka noʻonoʻo ʻana e pili ana i ka haʻi ʻana i ka poʻe hiki i ka paʻakikī ma mua o ka haʻi maoli ʻana iā lākou.

E hana ka poʻe i nā ʻano like ʻole. ʻO lākou paha:

• Kahaha.
• Weliweli. ʻAʻole maopopo paha i kekahi poʻe i ka mea e ʻōlelo ai, a hopohopo paha lākou e ʻōlelo hewa paha lākou. E hoʻomaopopo iā lākou ʻaʻohe ala kūpono e hana ai a ʻaʻohe mea maikaʻi e ʻōlelo ai.
• Kōkua. ʻIke lākou i kekahi mea ʻē aʻe me ka maʻi like a kamaʻāina lākou i ka mea e hana nei me ʻoe.

Hiki paha iā ʻoe ke nānā a maikaʻi i ka hapa nui o ka manawa. Akā i kekahi manawa, manaʻo paha ʻoe i ka maʻi a i ʻole ka liʻiliʻi o ka ikehu. ʻAʻole hiki iā ʻoe ke hana paʻakikī, a i ʻole pono ʻoe e hoʻomaha no ka mālama ʻana iā ʻoe iho. Ke kū kēia, makemake ʻoe i ka poʻe e ʻike e pili ana i kou maʻi a maopopo iā lākou ka mea e hana nei.

E haʻi i ka poʻe e pili ana i kou maʻi e palekana iā ʻoe. Inā loaʻa iā ʻoe kahi pilikia olakino, makemake ʻoe i nā poʻe e komo i loko a kōkua. O kahi laʻana:

• Inā loaʻa ʻoe i ka maʻi epilepsy, pono i kāu mau hoa hana e ʻike i ka mea e hana ai inā loaʻa ʻoe i ka hopu ʻana.
• Inā loaʻa ʻoe i ka maʻi diabetes, pono lākou e ʻike i nā ʻōuli o ke kō kō haʻahaʻa a me nā mea e hana ai.

Aia paha kekahi poʻe i kou ola e makemake e kōkua iā ʻoe e mālama iā ʻoe iho. E ʻike i kāu poʻe aloha a me nā hoaaloha pehea lākou e hiki ai ke kōkua iā ʻoe. I kekahi manawa wale nō kahi mea āu e kamaʻilio ai.

ʻAʻole paha ʻoe makemake mau i ke kōkua a ka poʻe. ʻAʻole paha ʻoe makemake i kā lākou ʻōlelo aʻo. E haʻi iā lākou e like me kou ʻoluʻolu. E noi iā lākou e mahalo i kou pilikino inā ʻaʻole ʻoe makemake e kamaʻilio e pili ana.

Inā hele ʻoe i kahi hui kākoʻo, makemake paha ʻoe e lawe i nā ʻohana, nā hoaaloha a i ʻole nā ​​poʻe ʻē aʻe pū kekahi. Hiki i kēia ke kōkua iā lākou e aʻo hou e pili ana i kāu maʻi a pehea e kākoʻo ai iā ʻoe.

Inā pili ʻoe i kahi hui kūkā kamaʻilio pūnaewele, makemake paha ʻoe e hōʻike i ka ʻohana a i ʻole nā ​​hoaaloha i kekahi o nā kau e kōkua iā lākou e aʻo hou.

Inā noho ʻoe hoʻokahi a ʻike ʻole i kahi e loaʻa ai ke kākoʻo:

• E noi i kāu mea hāʻawi e pili ana i kahi e hiki ai iā ʻoe ke loaʻa ke kākoʻo.
• E ʻike inā aia he ʻoihana kahi e hiki ai ke hāʻawi manawaleʻa. Pili nā ʻoihana olakino he nui i nā mea manawaleʻa. ʻO kahi laʻana, inā loaʻa ʻoe i ka maʻi ʻaʻai, hiki iā ʻoe ke hāʻawi manawaleʻa ma ka American Cancer Society.
• E ʻike inā he kamaʻilio a me nā papa e pili ana i kāu maʻi i kou wahi. Hāʻawi paha kekahi mau haukapila i kēia mau mea. Hiki i kēia ke lilo i ala maikaʻi e hālāwai ai me nā poʻe ʻē aʻe me ka maʻi like.

Pono ʻoe e kōkua me kāu mau hana ponoʻī, ke kiʻi ʻana i nā wā i koho ʻia, nā kūʻai ʻana, a me nā hana o ka home. E mālama i kahi papa inoa o ka poʻe hiki iā ʻoe ke noi no ke kōkua. E aʻo e ʻoluʻolu e ʻae i ke kōkua ke hāʻawi ʻia ia. Nui ka poʻe e hauʻoli e kōkua a hauʻoli e nīnau ʻia.

Inā ʻaʻole ʻoe e ʻike i kekahi e hiki ke kōkua iā ʻoe, e nīnau i kāu mea lawelawe a i ʻole mea hana kaiaulu e pili ana i nā lawelawe like ʻole i loaʻa i kāu wahi. Hiki paha iā ʻoe ke kiʻi i nā meaʻai i kou home, kōkua mai kahi mea kōkua olakino home, a i ʻole nā ​​lawelawe ʻē aʻe.

Ahmed SM, Hershberger PJ, Lemkau JP. Nā hopena psychosocial i ke olakino. I: Rakel RE, Rakel DP, eds. Puke aʻo o ka lāʻau lapaʻau ʻohana. 9th ed. Piladelapia, PA: Elsevier; 2016: chap 3.

Pūnaewele ʻAmelika Psychological Association. Ke kāohi nei i kahi hōʻailona o ka maʻi mau. www.apa.org/helpcenter/chronic-illness.aspx. Hoʻohou ʻAukake 2013. Loaʻa iā ʻAukake 10, 2020.

ʻO Ralston JD, ʻo Wagner EH. Ka hoʻoponopono maʻi maʻi piha. I: Goldman L, Schafer AI, eds. ʻO ka lāʻau lapaʻau Goldman-Cecil. 26th ed. Piladelapia, PA: Elsevier; 2020: chap 11.

• Ke kāohi ʻana i nā maʻi maʻi