Ka hoʻomaopopo ʻana iā Polycythemia Vera a me ka mālama ʻia

Anter

• Nā hōʻailona maʻamau o polycythemia vera
• No ke aha e pono ai e hoʻokele i ka polycythemia vera?
• Nā hōʻailona Polycythemia vera
• Pehea wau e ʻike ai inā e holo nei nā lāʻau?
• ʻO ka lawe lawe ʻana

ʻO Polycythemia vera (PV) kahi maʻi ʻaʻai koko laha ʻole kahi e hoʻonui ai ka iwi iwi i nā huna koko. ʻO nā keʻa ʻulaʻula keu e hoʻonui i ke koko a hoʻonui i ka makaʻu o ke kōkuʻu koko.

ʻAʻohe mea ola i kēia manawa no PV, akā hiki i nā mālama ke kōkua i ka pale ʻana i nā pilikia a me ke kamaʻilio ʻana i nā ʻōuli.

E hoʻonohonoho kāu kauka i nā hoʻokolohua maʻamau a me nā manawa i koho ʻia e nānā i kou olakino. He mea nui e nānā pinepine me kāu hui olakino ʻike lākou i kou ʻano.

E heluhelu e ʻike hou aʻe e pili ana i ka hoʻokele ʻana o ka PV, a pehea e ʻike ai ke holo nei nā lāʻau.

Nā hōʻailona maʻamau o polycythemia vera

ʻIke ʻia ʻo PV ma o ka hana maʻamau o ke koko ma mua o ka ʻike ʻana i nā ʻōuli. Nui nā ʻōuli o PV i nā kumu ʻē aʻe, no laila ʻaʻole mau ka hae ʻulaʻula iā lākou iho. E kamaʻilio me kāu kauka inā ʻike ʻoe i kahi loli i kou ʻano ke ʻano.

Inā loaʻa iā ʻoe nā hōʻailona, ​​ʻike paha ʻoe:

• luhi a palupalu paha
• ʻeha poʻo
• ʻūpā
• kani i nā pepeiao (tinnitus)
• ʻili ʻulaʻula
• nā pilikia ʻike, me nā wahi makapō a i ʻole ka ʻike maka
• ʻili ʻili, ʻoiai ma hope o ka ʻauʻau wela a ʻauʻau paha
• ʻeha o ka ʻōpū a i ʻole ke ʻano o ka piha (ka hopena o kahi ākea hoʻonui)
• ʻeha ka umauma
• ʻeha puʻupuʻu a huʻi paha

No ke aha e pono ai e hoʻokele i ka polycythemia vera?

Hoʻonui ka mānoanoa o nā aʻa o ke koko i ka PV i ka ʻōpala ʻana o ke koko. Hiki i kēia ke alakaʻi i kahi puʻuwai make make, hahau, a i ʻole pulmonary embolism e pili ana i ka thrombosis hohonu.

ʻOiai ʻaʻole hiki ke curable i ka PV, ʻaʻole ia he manaʻo ʻaʻole hiki ke mālama pono ʻia no kahi manawa lōʻihi loa. Hoʻolālā nā mālama ʻana iā PV e hōʻemi i nā hōʻailona a hoʻoliʻiliʻi i nā pilikia e pili ana i nā kahe o ke koko e ka hoʻohaʻahaʻa ʻana i ka nui o nā hunaola koko.

Nā hōʻailona Polycythemia vera

E kūkākūkā kāu hui olakino i nā lapaʻau maikaʻi loa no kāu PV ma muli o kāu pae koko a me nā hōʻailona.

Kau kauka paha i kau kauka i:

• koko lahilahi
• pale i nā pilikia
• mālama i nā ʻōuli

He mea nui e lawe i nā lāʻau e like me ke kuhikuhi.

Hoʻohana mau ʻia nā ʻano mālama aʻe e mālama iā PV:

• Phlebotomy, a i ʻole ka hoʻoneʻe ʻana i ke koko mai ke kino, e hoʻemi iki i ka paʻa o nā hunaola ʻulaʻula a maʻalahala i kou koko.
• Laulima aspirin therapy kōkua i ka lahilahi o kou koko.
• Anagrelide (Agrylin) hoʻemi i nā platelet i loko o kou koko, kahi e hoʻohaʻahaʻa ai i ka makaʻu o kahi ʻōpala.
• Nā Antihistamines mālama i ka ʻili ʻili, kahi hōʻailona PV maʻamau.
• Nā lāʻau Myelosuppressive e like me ka hydroxyurea hoʻoliʻiliʻi i ka nui o nā hunaola i hana ʻia i ka iwi iwi.
• Ruxolitinib (Jakafi) hiki ke kōkua inā ʻaʻole pane kāu PV i ka hydroxyurea, a i ʻole inā he pilikia waena a kiʻekiʻe paha kāu no ka myelofibrosis.
• Interferon alfa hoʻemi i ka hana ʻana o nā hunaola akā ʻaʻole kuhikuhi pinepine ʻia, no ka mea he kumu ia e hoʻonui i nā hopena ʻē aʻe ma mua o nā ʻano lāʻau ʻē aʻe.
• Lapaʻau māmā me ka hoʻohana ʻana i ka psoralen a me ke kukui ultraviolet hiki ke kōkua i ka hoʻokuʻu ʻana i ka itchiness i hoʻopili ʻia me PV.
• Mea hoʻoneʻe iwi iwi hoʻohana ʻia i kekahi manawa e hōʻemi i ka nui o nā hunaola i loko o ka iwi iwi.

Pehea wau e ʻike ai inā e holo nei nā lāʻau?

He maʻi maʻi mau ka PV i hiki ke hoʻokele maikaʻi ʻia i nā makahiki he nui. ʻO ka hana pū ʻana me kāu hui olakino ʻike lākou i nā loli i kou olakino i hiki ai iā lākou ke hoʻoponopono i kāu papa hana e pono ai.

Pono ka mālama ʻana i ka PV i nā kipa maʻamau me kahi loea o ka maʻi ʻaʻai (oncologist) a me ke kauka koko (hematologist). E nānā mau kēia mau kauka i kāu pae o ke koko e alakaʻi i nā hoʻoholo ʻana i ka hoʻoponopono.

E hoʻomaopopo pono i kāu poʻe lawelawe ola inā ʻike ʻoe i nā hōʻailona hou, e like me ka ʻeha o ka ʻōpū a i ʻole ka pehu pū.

ʻAʻole holo paha kāu mau lawelawe ʻana i kēia manawa inā ʻaʻole lākou e kuhikuhi i nā ʻōuli, a i ʻole inā hōʻike ke hana koko i nā kiʻekiʻe maʻamau o nā hunaola koko.

I kēia hihia, hiki i kāu kauka ke hoʻoponopono i kāu papa hana hoʻomaʻamaʻa PV. Pili paha kēia i ka hoʻololi ʻana i ka mahele lāʻau o kāu mau lāʻau a i ʻole ka hoʻāʻo ʻana i kahi lāʻau hou.

ʻO ka lawe lawe ʻana

ʻO Polycythemia vera (PV) kahi ʻano o ke kanesa maʻi koko e hiki ai ke mānoanoa i ke koko a hoʻonui i ka hopena o nā pehu. Hiki i ka nānā pono ʻana a me ka hoʻokele ke hōʻemi i nā hōʻailona a me ka makaʻu o nā pilikia.

Hoʻopili ka mālama ʻana no ka PV i ka hana maʻamau o ke koko, a komo pū paha me nā lāʻau a me ka phlebotomy. E hoʻopili me kāu hui olakino a hāhai i kāu papa hana e ʻike i kāu ʻoi loa.

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